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Gaining timely access to pediatric subspecialists is becoming increasingly difficult in the United States. Hospitals, primary care providers, families, and health plans are struggling with alternative ways to address this critical workforce shortage in pediatrics. One approach is to expand the reach of existing state and regional networks of pediatric subspecialty services and the other approach is to strengthen the capacity of primary care providers (PCPs) with more consultation support and coordination from pediatric subspecialists.
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The goal of this report is to identify promising approaches for strengthening the interface between primary care and specialty pediatric care. The Expert Work Group believes that through more effective collaboration with medical homes, the availability of pediatric subspecialty care will be improved and ultimately health outcomes for all children will be enhanced, especially for those with chronic conditions. Without effective collaboration, the availability of comprehensive and high quality medical homes for children can be compromised.
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Children require a different method to achieve the same high quality of service and care that is experienced by adult patients. Their language, understanding, and concerns, as well as the technical skills required, are all very different from those of adults. Some practitioners have natural talents in this setting, while others are quite uncomfortable. That discomfort often is felt by and passed onto the already anxious parent and child. This can result in poor communication, poor technical performance and consequently poor patient and staff satisfaction. Most facilities are capable of delivering this level of care if only the latent skills of its staff are allowed to blossom.
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The Data Resource Center for Child and Adolescent Health provides online access to survey data that allows users to compare state, regional, and nationwide results – plus resources and personalized assistance for interpreting and reporting findings.
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While many data sources exist to measure the health of children in the United States, few take into account the many contexts in which children grow and develop, including their family and community environments. The National Survey of Children’s Health, conducted for the first time in 2003, addresses multiple aspects of children’s health and well-being—including physical and mental health, health care, and social well-being—as well as aspects of the family and the neighborhood that can affect children’s health, on both the national and State levels. The survey was supported and developed by the U.S. Maternal and Child Health Bureau of the Health Resources and Services Administration and conducted by the National Center for Health Statistics of the Centers for Disease Control and Prevention.
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The Center for Medical Home Improvement provides improvement strategies for building a medical home in primary care for children with special health care needs.
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The National Center Medical Home Web Site is the premier resource for improving the lives of Children/Youth with Special Health Care Needs(CYSHCN) and their families through a medical home. The medical home Web site contains resources, state-specific links and information, tools and practical strategies on how to provide medical homes for CYSHCN. Nearly all of the materials on the site are available free to download. The information on this site is intended for all individuals who care for and about CYSHCN.
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