Journal Articles, Commentaries and Reviews

2014 Highlights

Transition Readiness Assessment for Sickle Cell Patients: A Quality Improvement Project
Authors: Jerlym S. Porter, PhD, MPH, Yvonne M. Carroll, RN, JD, Sheila Anderson, BSN, RN, Paul T. Lavoie Jr, PA-C, MHS, Latacha Hamilton, EdS, Margery Johnson, LCSW, and Jane S. Hankins, MD, MS.
Publication: Journal of Clinical Outcomes Measurement. 2014 Archives, Archives, June 2014, Vol. 21, No. 6, Reports from the Field

Positive Childbirth Experiences in US Hospitals: A Mixed Methods Analysis
Authors: Attanasio LB, McPherson M.E., Kozhimannil KB.
Publication: Matern Child Health J. 2014;18(5):1280-1290.

Pediatric Hematology Providers on Referral for Transplant Evaluation for Sickle Cell Disease: A regional perspective
Authors: Mikles B, Bhatia M, Oyeku SO, Jin Z, Green NS. 
Publication: Journal of Pediatric Hematology/Oncology. 2014. March 13

Using an Electronic Health Record-Based Registry to Improve Pediatric Sickle Cell Care
Authors: Patricia L. Kavanagh, MD, Amy E. Sobota, MD, MPH, Elizabeth S. McClure, BA, Philippa G. Sprinz, MD, MSc, and William G. Adams, MD.
Publication: Journal of Clinical Outcomes Measurement. 2014 Archives, April 2014, Vol. 21, No. 4.

Using Patient Navigators to Help Adults with Sickle Cell Disease Obtain a Primary Care Home
Authors: Linda S. Overholser, MD, MPH, Kathryn Hassell, MD, Rachelle Nuss, MD, Carol Reagan, MS, Shawnette Gillespie, Julie McAfee, Michael Regier, MSW, LCSW, Cheri Burge, Kathy Winder, RN, BSN, Thomas J. Bennet Jr, and Karen M. Chacko, MD.
Publication: Journal of Clinical Outcomes Measurement. July 2014, Vol. 21, No. 7.

Improving Care of Patients with Sickle Cell Disease and Sickle Cell Trait: The Hemoglobinopathy Learning Collaborative Series
Authors: Suzette O. Oyeku, MD, MPH, Elissa Z. Faro, PhD, and Charles J. Homer, MD, MPH
Publication: Journal of Clinical Outcomes Measurement. 2014 Archives, Editorial, February 2014, Vol. 21, No. 2.

A Quality Improvement Initiative to Improve Emergency Department Care for Pediatric Patients with Sickle Cell Disease
Authors: Marsha J. Treadwell, PhD, Michael Bell, MD, Sara A. Leibovich, MD, Fernando Barreda, BS, Anne Marsh, MD, Ginny Gildengorin, PhD, and Claudia R. Morris, MD.
Publication: Journal of Clinical Outcomes Measurement. 2014 Archives, February 2014, Vol. 21, No. 2.

Using Quality Improvement Methods to Implement an Individualized Home Pain Management Plan for Children with Sickle Cell Disease
Authors: Lori E. Crosby, PsyD, Kenya Simmons, MBA, Peggy Kaiser, MSNP, Blair Davis, MS, Patricia Boyd, RN, Tiffany Eichhorn, MSN, RN, Tracy Mahaney, BSN, Naomi E. Joffe, PhD, Darice Morgan, MSN, Kathy Schibler, MSN, Viia Anderson, MSN, Charles T. Quinn, MD, MS, and Karen A. Kalinyak, MD.
Publication: Journal of Clinical Outcomes Measurement. 2014 Archives, May 2014, Vol.21, No. 5.

Transition Readiness Assessment for Sickle Cell Patients: A Quality Improvement Project
Authors: Jerlym S. Porter, PhD, MPH, Yvonne M. Carroll, RN, JD, Sheila Anderson, BSN, RN, Paul T. Lavoie Jr, PA-C, MHS, Latacha Hamilton, EdS, Margery Johnson, LCSW, and Jane S. Hankins, MD, MS.
Publication: Journal of Clinical Outcomes Measurement. 2014 Archives, June 2014, Vol. 21, No. 6.

2013 Highlights

The Healthy Weight Collaborative: Using Learning Collaboratives to Enhance Community-based Prevention Initiatives Addressing Childhood Obesity
Authors: Hargreaves MB, Honeycutt T, Orfield C, et al.
Publication: J Health Care Poor Underserved. 2013;24(2A):103–115. doi:10.1353/hpu.2013.0095.

Recommendations for Evaluation of Health Care Improvement Initiatives
Authors
: Parry G.J., Carson-Stevens A., Luff D.F., McPherson M.E., Goldmann D.A.
Publication: Academic Pediatrics. 2013;13(6): S23-S30.

San Diego Healthy Weight Collaborative: A Systems Approach to Address Childhood Obesity
Authors: Serpas S, Brandstein K, McKennett M, Hillidge S, Zive M, Nader PR.
Publication: J Health Care Poor Underserved. 2013;24(2A):80–96. doi:10.1353/hpu.2013.0107

Next steps in obesity prevention: applying the systems approach
Authors
: Huang MT, Brownson PR, Esposito L, Green L, Homer C. 
Publication: Child Obes. 2013 Feb;9(1):11-4. doi:  0.1089/chi.2013.9102. Epub 2013 Jan 17.

A tall order: improve child health
Authors: Homer C.
Publication: Acad Pediatr. 2013 Nov-Dec; 13(6 Suppl):S5-6.

Accountable care organizations in pediatrics: irrelevant or a game changer for children?
Authors: Homer CJ, Patel KK.
Publication: JAMA Pediatr. 2013 Jun; 167(6):507-8.

Sickle Cell Disease Incidence among Newborns in New York State by Maternal Race/Ethnicity and Nativity
Authors: Wang Y, Kennedy J, Caggana M, Zimmerman R, Thomas S, Berninger J, Harris K, Green NS, Oyeku S, Hulihan M, Grant AM, Grosse SD.
Publication: Genet Med. 2013 Mar; 15(3):222-8.Epub 2012 Sep 27.

Parental and Other Factors Associated with Hydroxyurea Use for Pediatric Sickle Cell Disease

Authors: Oyeku SO, Driscoll MC, Cohen HW, Trachtman R, Pashankar F, Mullen C, Giardina PJ, Velazco N, Racine AD, Green NS.
Publication: Pediatr Blood Cancer. 2013 Apr; 60(4):653-8. Epub 2012 Nov 5

Hepatic Iron Quantification on 3T MR: Technical Challenges and Solution
Authors: Anwar M, Wood J, Manwani D, Taragin B, Oyeku SO, Peng, CQ.
Publication: Radiology Research and Practice. 2013;Vol 2013, Article ID: 628150 Epub 2013 May 22

Trends in Blood Transfusion among Hospitalized Children with Sickle Cell Disease

Authors: Raphael JL, Oyeku SO, Kowalkowski MA, Mueller BU, Ellison AM.
Publication: Pediatr Blood Cancer. 2013 Jun 18.

Hydroxyurea Is Associated With Lower Costs of Care of Young Children With Sickle Cell Anemia
Authors: Wang WC, Oyeku SO, Luo Z, Boulet SL, Miller ST, Casella JF, Fish B, Thompson BW, Grosse SD; for the BABY HUG Investigators.
Publication: Pediatrics.2013 Sep 2.

Sickle cell disease pain management and the medical home
Authors: Raphael JL, Oyeku SO.
Publication: Hematology Am Soc Hematol Educ Program. 2013;2013:433-8.
 

2012 Highlights

Quality Improvement Efforts Target Gaps in Newborn Hearing Screening Programs
Authors: Pallarito, Karen.
Publication
: The Hearing Journal. September 2012, Volume 65, Issue 9, pp 18,20,22

Moving Toward Better Measures

Authors: Homer CJ.
Publication: Pediatrics. 2012;129(3):574–575. doi:10.1542/peds.2011-3776

Collaborate for Healthy Weight (the Expert Weighs In)
Authors: Homer CJ.
Publication: Child Obes. 2012;8(3):187–190

Educating Health Care Professionals in Advocacy for Childhood Obesity Prevention in Their Communities: Integrating Public Health and Primary Care in the Be Our Voice Project
Authors: McPherson ME, Mirkin R, Heatherley PN, Homer CJ.
Publication: Am J Public Health. 2012;102(8):e37–e43. doi:10.2105/AJPH.2012.300833.

Hemoglobinopathy Learning Collaborative: Using Quality Improvement (QI) to Achieve Equity in Health Care Quality, Coordination, and Outcomes for Sickle Cell Disease
Authors: Oyeku SO, Wang JC, Scoville R, Vanderkruik R, Clermont E, McPherson ME, Adams WG, and Homer CJ.
Publication: Journal of Health Care for the Poor and Underserved Volume 23 (2012): 34–48. (Link to full article Note: The full text of this article is being shared with the permission of Meharry Medical College and the Journal of Health Care for the Poor and Underserved).

The Healthy Weight Collaborative - Quality Improvement Methods Promoting Healthy Weight
Authors: McPherson ME, VanderKruik R, Reims K, Coulouris N, Anand S, Linde-Feucht S, and Homer CJ.
Publication: Journal of Health Care for the Poor and Underserved Volume 23 (2012): 21–33. (Link to full article Note: The full text of this article is being shared with the permission of Meharry Medical College and the Journal of Health Care for the Poor and Underserved).

Interventions to improve screening and follow-up in primary care: a systematic review of the evidence
Authors: Van Cleave J, Kuhlthau KA, Bloom S, Newacheck PW, Nozzolillo AA, Homer CJ, Perrin JM.
Publication: Acad Pediatr. 2012 Jul;12(4):269-82. Epub 2012 May 8.

Educating health care professionals in advocacy for childhood obesity prevention in their communities: integrating public health and primary care in the be our voice project

Authors: McPherson ME, Mirkin R, Heatherley PN, Homer CJ.
Publication: Am J Public Health. 2012 Aug;102(8):e37-43. Epub 2012 Jun 14.

2011 Highlights

Fighting childhood obesity: Resources to help the community pediatrician curb this epidemic
Authors: Armstrong SC, Best D, McPherson ME
Publication: Contemp Pediatr. 2011;28(2):40–51

The Primary Care Pediatrician’s Role in Obesity Prevention, Assessment, and Management: Voices of Experience
Authors: Homer CJ, Barlow SE, Bolling CF, Cook SR, Liu LL, Rogers VW
Publication: Child Obes Former Obes Weight Manag. 2011;7(3):169–176. doi:10.1089/chi.2011.0300.roun

The Primary Care Pediatrician’s Role in Obesity Prevention, Assessment, and Management: Voices of Experience
Authors: Homer CJ, Barlow SE, Bolling CF, Cook SR, Liu LL, Rogers VW.
Publication: Child Obes Former Obes Weight Manag. 2011;7(3):169–176. doi:10.1089/chi.2011.0300.roun

Policies to Support Obesity Prevention for Children: A Focus on of Early Childhood Policies

Authors: McPherson ME, Homer CJ.
Publication: Pediatr Clin North Am. 2011;58(6):1521–1541

Measuring patient and family experiences of health care for children
Authors: Co JP, Sternberg SB, Homer CJ.
Publications: Acad Pediatr. 2011 May-Jun;11(3 Suppl):S59-67

Review of quality measures of the most integrated health care settings for children and the need for improved measures: recommendations for initial core measurement set for CHIPRA
Authors: Sternberg SB, Co JP, Homer CJ.
Publications: Acad Pediatr. 2011 May-Jun;11(3 Suppl):S49-S58.e3

Evidence for family-centered care for children with special health care needs: a systematic review

Authors: Kuhlthau KA, Bloom S, Van Cleave J, Knapp AA, Romm D, Klatka K, Homer CJ, Newacheck PW, Perrin JM.
Publication: Acad Pediatr. 2011 Mar-Apr;11(2):136-43.

From my head and my heart: improving quality of care for children and youth with special health care needs
Author: Homer CJ.
Publication: Acad Pediatr. 2011 Mar-Apr;11(2):110-4. Epub 2011 Feb 1.

Measuring patient and family experiences of health care for children
Authors: Co JP, Sternberg SB, Homer CJ.
Publication: Acad Pediatr. 2011 May-Jun;11(3 Suppl):S59-67.

Challenge to child health services research: report from the Committee on Pediatric Health and Health Care Quality Measures
Authors: McCormick MC, Flores G, Freed GL, Homer CJ, Johnson KB, DeFriese GH.
Publication: Acad Pediatr. 2011 Jul-Aug;11(4):257-9

Improving improvement for childhood asthma
Author: Homer CJ.
Publication: JAMA. 2011 Oct 5;306(13):1487-8.

Policies to support obesity prevention for children: a focus on of early childhood policies
Authors: McPherson ME, Homer CJ.
Publication: Pediatr Clin North Am. 2011 Dec;58(6):1521-41, xii.

2010 Highlights and Older

How to Scale Up Primary Care Transformation - What We Know and What We Need to Know?
Authors: Homer CJ and Baron RJ
Publication: Journal of General Internal Medicine Volume 25 Issue 6 (2010): 625-629.

Foreword: A Great Start and A Long Way to Go
Author:  Homer CJ
Publication: Pediatr Clin North Am. 2009;56(4):xxv–xxvii. doi:10.1016/j.pcl.2009.05.019

Responding to the Childhood Obesity Epidemic: From the Provider Visit to Health Care Policy--Steps the Health Care Sector Can Take
Author: Homer CJ
Publication: Pediatrics. 2009;123(Supplement_5):S253–257. doi:10.1542/peds.2008-2780B

Childhood Obesity: The Role of Health Policy
Authors: Simpson L, Alendy C, Cooper J, Murphy CG.
Publication: Policy Sub-Committee of the Childhood Obesity Action Network, NICHQ; 2008

A Review of the Evidence for the Medical Home for Children With Special Health Care Needs
Authors: Homer CJ, Klatka K, Romm D, Kuhlthau K, Bloom S, Newacheck P, Van Cleave J, Perrin JM
Publication: Pediatrics. 2008;122;e922-e937; DOI: 10.1542/peds.2007-3762

Childhood Obesity: What’s Health Care Policy Got To Do With It?
Authors:  Homer CJ, Simpson,  LA
Publication: Health Affairs March 2007 vol. 26 no. 2 441-444

Improving the care of children with asthma in pediatric practice: the HIPPO project
Authors: Heinrich P, Homer CJ.
Publication: Pediatr Ann. Helping Improve Pediatric Practice Outcomes. 1999;28(1):64–72

Comparing Medical Homes for Children with ADHD and Asthma
Authors: Toomey CJ, Homer CJ, Finkelstein JA.
Publication: Acad Pediatr. 2010 Jan-Feb;10(1):56-63.

How to Scale Up Primary Care Transformation: What we know and what we need to know?
Authors: Homer CJ, Baron R.
Publication: J Gen Intern Med. 2010 June;25(6):625-9.

 

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Get updates on NICHQ's latest publications by subscribing to NICHQ News, NICHQ's monthly e-newsletter. Published the third Tuesday of every month, NICHQ News contains the latest publications, toolkits, videos, resources, success stories and thought leadership from NICHQ.

 

NICHQ Publications

Joining Forces for Healthier Communities
Published: 2012
This report presents examples of how 10 teams in the Collaborate for Healthy Weight project brought together primary care providers, public health professionals, and leaders of community organizations to work across traditional professional borders to address obesity at the community level.
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Powerful Partnerships:
A Handbook for Families and Providers Working Together to Improve Care
Published: 2012
This guide is intended to help both family members and healthcare professionals who are working together to improve care for children with special healthcare needs. Joining together in multi-disciplinary teams, family members and providers are increasingly working as equal partners to improve care. Collaborating as equals may be new for family members and providers. This guide includes information and guidance on how to get the most out of this potentially powerful partnership.
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Building Healthier Communities:
How healthcare professionals are fighting childhood obesity outside the clinic walls
Published: 2011
This report presents eight stories about healthcare professionals who used their voices to advocate for policy changes designed to improve the health of children and families. This report was developed as part of the Mobilizing Healthcare Professionals as Community Leaders in the Fight Against Childhood Obesity project.
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Changing Pediatric Residency Training to Improve Quality of Care for Children and Youth with Special Healthcare Needs
Published: 2011
In the California Medical Education Collaborative project, NICHQ was tasked with developing a framework for training pediatricians to deliver care to children with chronic illness in a medical home model by redesigning pediatric training programs in California. This report details the framework and approach NICHQ recommended.
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Improving Systems, Changing Futures:
Engaging Title V, Families and Clinical Partners in Improving the System of Care for Children and Youth with Special Healthcare Needs
Published: 2011
In the Spread of Quality Improvement for Children and Youth with Special Healthcare Needs: An integrated Systems Strategy for Building the Title V Infrastructure project, NICHQ was tasked with improving the health and well being of children and youth with special healthcare needs (CYSHCN) and their families through building the capacity of state Title V programs to create and sustain effective community-based systems of care for this population. This report documents NICHQ's learnings and impact.
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Enhancing Communication:
Improving Care for Infants with Hearing Loss
Published: 2009
In the Improving Follow-Up to Newborn Hearing Screening by Working Through the Medical Home project, NICHQ was tasked with improving the long term outcomes for children with hearing loss by strengthening the several components of follow up to newborn hearing screenings, including definitive diagnosis, entry into appropriate care and services, and connection to a medical home. This report summarizes NICHQ's learnings and impact.
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Expanding Perspectives:
Improving Cultural Competency in Children's Health Care
Published: 2005
The challenge before us is how best to create a healthcare system in which all children receive care that is safe, effective, efficient, timely and family centered, regardless of background or cultural differences. What practical changes in processes can make healthcare providers and the systems in which they work more effective in responding to the needs of diverse children? And how can health care delivery organizations track their progress? This report describes our initial efforts to answer these questions, and provides recommendations and findings from early pilot test results.
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