The Linchpin in Patient-Centered Medical Home Transformation
Posted August 11, 2015 by NICHQ
NICHQ has long been a champion for the active participation of family partners on improvement teams. The reason is simple: system improvement should be driven by the perspective of the people most closely affected by the system’s performance. We have heard time and time again from providers and family partners that the experience of working together is invaluable.
This was a foundational principle for the CHIPRA Massachusetts Medical Home Initiative, in which the engagement of family partners on improvement teams helped transform 13 pediatric practices into patient-centered medical homes (PCMHs). As a result, the initiative was among the nominees for the 2015 John Q. Sherman Award for Excellence in Patient Engagement.
Reflecting on this nomination, Ziva Mann, a family partner in the CHIPRA initiative, recently shared her story on the EngagingPatients.org blog. In this post, Mann tells of her journey to becoming a family partner in her son’s medical practice and how partnering with healthcare professionals helped the practice make important improvements. Here is an excerpt from the post, entitled “Patient Engagement: The Linchpin in PCMH Transformation.”
Our first son, Shai, was born on an achingly cold night. The first thing he heard was his father singing a lullaby. He looked at me, his head lumpy from a long delivery, and I knew that nothing, ever, had been as precious and wonderful as this tiny little person.
Eight days later, we were in an ambulance. At 10 days old, he was diagnosed with severe hemophilia. Over the next three years, Shai was admitted to the hospital over and over with complications, new diagnoses. We learned about the hospital: who was in charge, who could explain things, and where we could find food, shampoo and even a hidden, beautiful garden. We learned to speak the hospital’s language: infusion, antecube, O-sat, PICC, Port-a-Cath, NPO. But for all we learned, we were still lost. (Read the full post.)
To learn more about NICHQ's medical home work, visit http://medicalhome.nichq.org/
To learn more about the value of patient and family engagement, visit our Expertise section.