Family Engagement

  • How One Mom is Raising the Profile of Sickle Cell Disease

    Posted May 27, 2015 by Cindy Hutter

    Tammy Smith’s daughter, Precious, often got sick as a baby and she cried—a lot. It wasn’t until Precious became so sick and nearly died that Tammy took her to a different hospital for treatment and learned that Precious had sickle cell disease (SCD). Fast forward 30 years and Tammy is making sure other families don’t have the same experience that she and her daughter had.

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  • Making the Case for Using an Internal PTF for Medical Homes

    Posted April 03, 2015 by Cindy Hutter

    In our new white paper, Cultivating Internal Change Agents for Medical Home Transformation, learn about an innovative approach to training internal practice transformation facilitators (PTFs) for medical home implementation efforts.

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  • Patient Passports Bring Us One Step Closer to a Patient-Centered Healthcare System

    Posted March 19, 2015 by Cindy Hutter

    NICHQ’s Chief Financial Officer and ardent patient engagement advocate, Tom Dahlborg, MSM, has written extensively about the need for patient-centered care. Dahlborg represents NICHQ on the National Quality Forum’s patient and family engagement action team. The team recently released a Patient Passport tool that encourages better patient engagement with providers.

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  • Why and How to Include the Patient-Family Voice in a Medical Home

    Posted December 23, 2014 by Bonnie Thompson, Mass Family Voices

    As more primary care practices work towards identifying themselves as a medical home, patients and family caregivers can play a vital role in shaping how healthcare is delivered.

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  • Patient Engagement, Partnerships and Puppies

    Posted October 27, 2014 by Tom Dahlborg, MSM

    I was recently invited to host the World Congress Patient Engagement Summit in Boston. The event promised to “leave behind theory and bring about actionable change with actionable solutions to engage patients and move the needle on clinical outcomes and community health.” And, it lived up to this billing.

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  • 10 Steps for Benching Bullying

    Posted April 22, 2014 by Tom Dahlborg, MSM

    There are many broader influences that affect children’s health outside of the clinical setting. This certainly includes the bullying that happens on our ball fields that can lead to physical injury, social problems, emotional problems, mental health problems (e.g., depression, anxiety), and even death. Not to mention bullying can turn children off from physical activities and this can potentially lead to obesity. As an organization that aims for all children to achieve their optimal health, there is much work to be done…together.

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  • Systems Level Healthcare Improvement Starts with Individual Relationships

    Posted February 24, 2014 by Tom Dahlborg, MSM

    Want to improve the healthcare system from a systems perspective? Develop systems which allow for time, continuity, relationship, trust, authentic sharing, the telling and hearing of the patient’s whole story at each healthcare encounter. Create system change which positions clinicians to use tools such as emotional intelligence and motivational interviewing to ensure optimal sharing and comprehension.

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