Collaborative to Improve Care for Children with Autism Spectrum Disorder

Status: Complete

WHAT: A quality improvement initiative to make care for children with autism spectrum disorder (ASD) better in three areas: constipation, insomnia and wait time for treatment. The collaborative expands the work of the Autism Intervention Research Network.

WHO: Healthcare teams at 14 Autism Treatment Network (ATN) sites across North America.

WHEN: September 2011 to February 2014

FUNDER: The Autism Treatment Network (ATN), a program supported by Autism Speaks, through a grant from the Autism Intervention Research Network on Physical Health (AIR-P).

NICHQ'S ROLE: Led a Breakthrough Series learning collaborative to apply quality improvement methodology including rapid tests of change to implement the ATN/AIR-P Care Model and improve care for children with ASD. Oversaw team’s use of algorithms to provide treatment for constipation and insomnia, development of a standardized review of systems to identify symptoms, and implementation of a monitoring protocol for patients taking atypical antipsychotic medications.

Project Videos

Title: Working with Parents to Improve Care for Children with Autism
Produced By: NICHQ

Title: Parent Story - "He's Just a Boy"
Produced By: NICHQ

Woman helping two young girls do their class work

Project Publications

Improving Access to Care at Autism Treatment Centers: A System Analysis Approach. Austin J, Manning-Courtney P, Johnson M, Weber R, Johnson H, Murray D, Ratliff-Schaub K, Marquette Tadlock K, Murray M
Publication: Pediatrics Feb 2016, 137 (Supplement 2) S149-S157. SourceExternal Link

Leadership in Health Care, Research, and Quality Improvement for Children and Adolescents With Autism Spectrum Disorders: Autism Treatment Network and Autism Intervention Research Network on Physical Health. Lajonchere C, Jones N, Coury DL, and Perrin JM. Pediatrics 2012; 130(S2): S62-S68. SourceExternal Link