World Congress Patient Engagement Summit banner

Featured Toolkit:

Next Steps: A Practitioner's Guide For Themed Follow-up Visits For Their Patients to Achieve a Healthy Weight
Next Steps: A Practitioner's Guide For Themed Follow-up
Visits For Their Patients to Achieve a Healthy Weight

Family and Patient Engagement in Quality Improvement

To improve health and healthcare, systems should include and be driven by the needs of those it serves. NICHQ has been working in partnership with parents, families and patients since its inception to create sustainable, beneficial change.

Family and patient partners have insights into healthcare systems that can’t be captured by surveys. By including patients and families in teams of healthcare professionals, administrators and others in the beginning of quality improvement work, teams are able to better target efficient, meaningful and sustainable improvements in healthcare. Time and time again, both patients and healthcare partners have told NICHQ that the experience of working together in a quality improvement team has been invaluable on both sides.

Please see below for more information and resources. And if you’d like assistance on how your practice or organization can better partner with families and patients to target change, please contact us at

The Value of Parent Partners

Video Summary: NICHQ helps healthcare practitioners and administrators work together with families and patients to bring sustainable improvements to children's health. Watch what a few of our healthcare partners and parent partners have to say about the experience!

Nobody Suspected: A Parent's Perspective on Children's Hearing Loss Diagnosis

Video Summary: Helen Cotton-Leiser, a parent partner in NICHQ's Improving Hearing Screening and Intervention Systems (IHSIS) project and Executive Director of the Hands & Voices of Oregon, shares her story of her two daughters' hearing loss diagnoses.

For the transcript of this video or to watch the uncaptioned version, click here to view the video on YouTube.

Parent Story: "He's Just a Boy"

Video Summary: In this gripping presentation, a NICHQ parent partner recounts her son's diagnosis of autism spectrum disorder (ASD). Shelly Armstrong is now participating in NICHQ's Collaborative to Improve Care for Children with Autism Spectrum Disorder to help better care for ASD treatment.

"Why I Participate"

  • Ziva Mann shares her story on the importance of a medical home and how partnering with healthcare professionals helped a practice achieve improvements.
  • Lindsay Fonseca shares her personal experience of breastfeeding and story of advocacy as a Parent Partner in the Best Fed Beginnings project.
  • Tonya Bowman has a daughter with hearing loss. She is a professional parent advocate on NICHQ’s hearing screening improvement project.
  • Wendy Hewitt was sent through a complex maze of specialists to get her son the care he needed for his hearing loss. Now she is a parent partner on NICHQ’s hearing screening improvement project.
  • Trang Neimetz, the parent chair for the Texas Ten Step Star Achiever Breastfeeding Learning Collaborative, shares her personal story of facing challenges with breastfeeding and what led her to advocate for improved breastfeeding support for families.





CAN DO Playbook - Click to get started

Check Out Our Blog:
The Improvement Quotient - A NICHQ Blog

Join Us Here:

NICHQ on FacebookNICHQ on YouTubeNICHQ on TwitterNICHQ on LinkedInNICHQ on PinterestGoogle+


Get Our Newsletter:

Sign up for our monthly email and never miss a thing.

Make a Donation:

Support our work to improve children's health.