Family and Patient Engagement in Quality Improvement
To improve health and healthcare, systems should include and be driven by the needs of those it serves. NICHQ has been working in partnership with parents, families and patients since its inception to create sustainable, beneficial change.
Family and patient partners have insights into healthcare systems that can’t be captured by surveys. By including patients and families in teams of healthcare professionals, administrators and others in the beginning of quality improvement work, teams are able to better target efficient, meaningful and sustainable improvements in healthcare. Time and time again, both patients and healthcare partners have told NICHQ that the experience of working together in a quality improvement team has been invaluable on both sides.
Please see below for more information and resources. And if you’d like assistance on how your practice or organization can better partner with families and patients to target change, please contact us at firstname.lastname@example.org.
Nobody Suspected: A Parent's Perspective on Children's Hearing Loss Diagnosis
Video Summary: Helen Cotton-Leiser, a parent partner in NICHQ's Improving Hearing Screening and Intervention Systems (IHSIS) project and Executive Director of the Hands & Voices of Oregon, shares her story of her two daughters' hearing loss diagnoses.
Parent Story: "He's Just a Boy"
Video Summary: In this gripping presentation, a NICHQ parent partner recounts her son's diagnosis of autism spectrum disorder (ASD). Shelly Armstrong is now participating in NICHQ's Collaborative to Improve Care for Children with Autism Spectrum Disorder to help better care for ASD treatment.
"Why I Participate"
- Tonya Bowman has a daughter with hearing loss. She is a professional parent advocate on NICHQ’s hearing screening improvement project.
- Wendy Hewitt was sent through a complex maze of specialists to get her son the care he needed for his hearing loss. Now she is a parent partner on NICHQ’s hearing screening improvement project.
- Powerful Partnerships: A Handbook for Families and Provider Working Together to Improve Care
- Creating a Patient and Family Advisory Council: A Toolkit for Pediatric Practices