Sickle Cell Disease Projects

Sickle Cell Disease

April 16, 2014
The Power of a Phone Call: Following Up on Sickle Cell Disease

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January 18, 2014
When the ER Can’t Hear You: Tips and Transition Tools for Families with Sickle Cell Disease
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November 15, 2013
Leadership Engagement is Critical to the Success of Improvement Efforts
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WISCH (Working to Improve Sickle Cell Healthcare)
NICHQ’s portfolio of projects focused on improving the quality of care for individuals with sickle cell disease across the lifespan. These projects include the Sickle Cell Disease Newborn Screening Program and the Sickle Cell Disease Treatment Demonstration Program, both of which are funded through the Health Resources and Services Administration (HRSA). Partners in this work include the Sickle Cell Disease Association of America and Boston Medical Center.

Improving Sickle Cell Transitions of Care through Health Information Technology
This project is focused on understanding if and how a patient-centered, technology-based tool can improve the health of individuals with sickle cell disease (SCD) during care transitions. The project is funded by the Agency for Healthcare Research and Quality (AHRQ) and conducted in partnership with The Lewin Group, Children’s National Medical Center, Cincinnati Children’s Hospital Medical Center and Nemours.

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