Sickle Cell Disease Projects
Sickle Cell Disease
April 16, 2013
Patient ‘Navigators’ Help Manage Care and Overcome Social Obstacles for Patients with SCD
February 19, 2013
Technology Improves Sickle Cell Disease Care Beyond the Clinic
December 18, 2012
Q&A with Dr. Kwaku Ohene-Frempong about the importance of sickle cell screening and disparities between the US and abroad
WISCH (Working to Improve Sickle Cell Healthcare)
NICHQ’s portfolio of projects focused on improving the quality of care for individuals with sickle cell disease across the lifespan. These projects include the Sickle Cell Disease Newborn Screening Program and the Sickle Cell Disease Treatment Demonstration Program, both of which are funded through the Health Resources and Services Administration (HRSA). Partners in this work include the Sickle Cell Disease Association of America and Boston Medical Center.
Improving Sickle Cell Transitions of Care through Health Information Technology
This project is focused on understanding if and how a patient-centered, technology-based tool can improve the health of individuals with sickle cell disease (SCD) during care transitions. The project is funded by the Agency for Healthcare Research and Quality (AHRQ) and conducted in partnership with The Lewin Group, Children’s National Medical Center, Cincinnati Children’s Hospital Medical Center and Nemours.