Spread of Quality Improvement for Children and Youth with Special Healthcare Needs
A project to improve the health and well-being of children and youth with special health care needs and their families through building the capacity of state Title V programs—in concert with other state-based partners—to create and sustain effective community-based systems of care.
October 2007 to June 2011
- Who: The project engaged 22 teams from 17 states. An additional 18 state teams participated in an abbreviated form of training resulting from this project called Jump Start.
- Funder: The project was funded by the US Department of Health and Human Services Administration, Maternal and Child Health Bureau.
- Our Role: Led a planned innovation program to identify successful state level strategies of enhancing healthcare and other community services, synthesized a new framework for subsequent collaborative processes, and assessed its validity through expert review and field testing. Facilitated a Breakthrough Series learning collaborative to apply the framework of the innovation program to two topic areas— epilepsy and the newborn hearing screening.
Improving Systems: Changing Futures
In the Spread of Quality Improvement for Children and Youth with Special Healthcare Needs: An integrated Systems Strategy for Building the Title V Infrastructure project, NICHQ was tasked with improving the health and well being of children and youth with special healthcare needs and their families through building the capacity of state Title V programs to create and sustain effective community-based systems of care for this population. This report documents NICHQ's learnings and impact.
Did You Know?
Through this project, NICHQ developed the Title V Index to provide a framework for Title V programs to reflect on their own capacity to make and sustain system change. The index is modeled after the Medical Home Index and consists of six care domains: 1) overall leadership; 2) partnerships across public and private sectors (including families); 3) quality improvement; 4) use of available resources; 5) coordination of service delivery; and 6) data infrastructure.