Toolkit for Families of Children with Special Healthcare Needs - Epilepsy
Tool 2: Medication List/Wallet Card
My sixteen year old daughter was diagnosed with epilepsy when she was three months old, and in those sixteen years she has been on over eighteen anti-epileptic medications and combinations of medications. As most of you know, many of the drugs have complicated names and spellings, most have to be titrated carefully, and dosing is often confusing and variable. Confusion is added when we visit multiple specialists and have to coordinate information about our child for each provider. Family leaders determined that having a wallet-sized medication list, something that can be easily downloaded and filled out, as well as carried in a wallet or purse, is extremely helpful for the overall organization of the child's care. Here is an example of a wallet-sized medication list to download. The list is available in English and Spanish.
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