Toolkit for Families of Children with Special Healthcare Needs - Epilepsy
Tool 3: Pictorial Descriptions of Seizures
Those of us who have a family member with epilepsy often have a difficult time describing our child's seizures to doctors and other care-givers. We know how important it is to accurately describe these seizures since they often don't occur in a doctor's office. Parent leaders on the epilepsy collaborative determined that this problem is often worsened when there are cultural differences and literacy issues. Family leaders worked hard to come up with pictorial representations of seizures, a form that could be used by family members and physicians to accurately describe and depict the child's epilepsy and therefore improve both communication and treatment. Pictorial representations of seizure have been developed in English/ Farsi and English/ Vietnamese. You may also want to use a Seizure Log to keep track of seizure activity.
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