Toolkit for Families of Children with Special Healthcare Needs - Epilepsy
Tool 6: Local Community Resources
When a child is diagnosed with special healthcare needs, there is a huge amount of information to digest, and often families aren't directed toward the proper resources. We found during improvement collaboratives that parents often learn about resources in their communities piecemeal, losing time, money and even developmental progress for their child. Providers are also constrained by time and often don't know what resources exist in their patients' communities. Having a parent partner work collaboratively with local agencies to create such a resource list was found to be tremendously helpful, especially when the document was given to families who had newly diagnosed children.
Examples of resource lists:
Resource List Example
Maine and New Hampshire Resource Guide
California Parent Resource Guide (in Spanish)
Click here for a template resource list that can be customized with details of your own local resources.
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