Toolkit for Families of Children with Hearing Loss
Video introduction by Janet DesGeorges, Parent Chair for Newborn Hearing Screening, Improving Systems of Care Learning Collaborative
Download the transcript of this video.
Did you know that from the minute your baby was screened for hearing in the hospital, you became part of a ‘system of care’? The following information for families is a result of the Improving Systems of Care newborn hearing screening and follow-up learning collaborative that asked those of us in the system (agencies, professionals and family) to look at aspects of newborn hearing screening and follow-up for ways to improve the process for families. We hope you will find these tools useful and invite you to provide feedback for us to improve them.
Tips and Tools
The following information is here to help you, as a family member, navigate your journey with your child. Families who take a pro-active approach with the professionals who serve them have better outcomes for their children.
Tip 1: Communicate with your doctor about your baby’s screening process
Tip 2: Give two contact numbers where you can be reached
Tip 3: Ensure your providers know your family’s language preference
Tip 4: Consider using decision tools
Tip 5: Schedule follow-up appointments after newborn hearing screening before you are discharged from the birth hospital
Tip 6: Ensure that your physician and early intervention provider can ‘talk’ to each other
Tool for Developing Roadmaps
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