Creating a Patient and Family Advisory Council:
A Toolkit for Pediatric Practices


Index of Resources

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Introduction
Step One
Step Two
Step Three
Step Four

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Full Introduction & FAQ


Resource Name: Annual Reports of Patient and Family Advisory Councils and Committees
Source: Institute for Patient- and Family-Centered Care (IPFCC)
Type: Link
View: http://www.ipfcc.org/advance/topics/annual-reports.html

Resource Name: Patient and Family Centered Care Accomplishments 2011
Source: Intermountain Primary Children’s Medical Center
Type: PDF
View: http://www.ipfcc.org/advance/topics/annual-report-pfcm_2011.pdf

Resource Name: Accomplishments of the Patient & Family Advisor Councils
Source:
Memorial Healthcare System
Type:
Link
View:
http://www.mhs.net/patients/patient-care/accomplishments.cfm

Resource Name: A Report from Family Partners Council 2011
Source:
Le Bonheur Children's Hospital
Type:
PDF
View:
http://www.ipfcc.org/advance/topics/annual-report-fpc-2010.pdf

Resource Name: Adult Patient & Family Partnership Council Annual Report
Source:
MultiCare Health System Adult Patient & Family Partnership Council
Type:
PDF
View:
http://www.ipfcc.org/advance/topics/annual-report-multicare-apfpc.pdf

Resource Name: Mary Bridge Teen Partnership Council Annual Report
Source:
MultiCare Health System Mary Bridge Teen Partnership Council
Type:
PDF
View:
http://www.ipfcc.org/advance/topics/annual-report-multicare-mbtpc.pdf

Resource Name:
Discovery Shopping
Source:
National Initiative for Children's Healthcare Quality (NICHQ)
Type:
PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step2_Discovery-Shopping.pdf

Resource Name:
Walking in the Patient's Footsteps
Source:
Primary Care Progress
Type:
Video
View:
http://www.youtube.com/watch?v=u5vhYBVpZ4w

Resource Name: Who You Gonna Call?
Source: Mass Family Voices, a project of The Federation for Children with Special Needs
Type: Article
View:
http://fcsn.org/appleleaders/Who_You_Gonna_Call.pdf

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Step One: Assess Practice Readiness


Resource Name: Standards for Patient-Centered Medical Home (PCMH) 2011
Source: National Committee for Quality Assurance (NCQA)
Type:
PDF
View:
http://www.iafp.com/pcmh/ncqa2011.pdf

Resource Name: Medical Home Index
Source: The Center for Medical Home Improvement
Type: PDF
View:
http://www.medicalhomeimprovement.org/pdf/CMHI-MHI-Pediatric_Full-Version.pdf

Resource Name:
Leadership Readiness Assessment
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View: http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step1_Leadership-Readiness-Assessment.pdf

Resource Name: Staff Readiness Assessment
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View: http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step1_Staff-Readiness-Assessment.pdf

Resource Name: Chartering your PFAC: Purpose and Structure
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View: http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step1_Chartering-Your-PFAC.pdf

Resource Name: Consumer Engagement Assessment
Source: University of Massachusetts Medical School
Type: PDF
View: http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step1_Consumer-Engagement-Assessment.pdf

Resource Name: Your Practice PFAC and Bylaws
Source: Institute for Patient- and Family-Centered Care (IPFCC)
Type: PDF
View: http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step1_Your-Practice-PFAC-and-Bylaws.pdf

Resource Name: PFAC Pre-Launch Checklist
Source: BJC Health Care
Type: PDF
View: http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step1_Pre-Launch-Checklist.pdf

Resource Name: MaineGeneral's Patient Family Advisory Council
Source: MaineGeneral Health
Type: Video
View: http://www.youtube.com/watch?v=IuxHx4Va_EE

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Step Two: Recruit Diverse Patient and Family Representatives as Council Members


Resource Name: Mary Bridge Teen Partnership Council
Source:
MultiCare Health System
Type:
Link
View:
http://www.multicare.org/home/patient-family-partnership

Resource Name:
Teen Advisory Committee
Source: Children’s Hospital Boston
Type: Link
View: http://childrenshospital.org/patientsfamilies/Site1393/mainpageS1393P405.html

Resource Name:
Sample--Invitation to Join a PFAC
Source: Skagit Pediatric
Type: Word Document
View: http://www.medicalhome.org/4Download/leadership/fac.doc

Resource Name: Template--Flyer for First PFAC Meeting
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF and Word Document
View (PDF): http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step2_Flyer-First-PFAC-Meeting.pdf
View (Word): http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step2_Flyer-First-PFAC-Meeting.docx

Resource Name: Sample--Family Advisor Job Description
Source: Memorial Health System
Type: Link
View: http://www.mhs.net/patients/patient-care/about-advisory-councils.cfm

Resource Name: Sample--Family Advisor Application
Source: Memorial Health System
Type: PDF
View: http://www.mhs.net/pdf/PFCC_advisoryapplication.pdf

Resource Name: Recruitment Planning Worksheet
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View: http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step2_Recruitment-Plan-Worksheet.pdf

Resource Name: Recruitment Guide
Source: Organizing for Health
Type: PDF
View: http://rippelfoundation.org/rpf-dev/wp-content/uploads/2012/01/Recruitment-Guide-Organizing-for-Health.pdf

Resource Name: PFAC Meeting Invitation Checklist
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View: http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step2_Invitation-Checklist.pdf

Resource Name: Discovery Shopping
Source:
National Initiative for Children's Healthcare Quality (NICHQ)
Type:
PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step2_Discovery-Shopping.pdf

Resource Name:
Walking in the Patient's Footsteps
Source:
Primary Care Progress
Type:
Video
View:
http://www.youtube.com/watch?v=u5vhYBVpZ4w

Resource Name: Who You Gonna Call?
Source: Mass Family Voices, a project of The Federation for Children with Special Needs
Type: Article
View:
http://fcsn.org/appleleaders/Who_You_Gonna_Call.pdf

Resource Name: Sample--Membership Agreement Letter
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step2_Membership-Agreement-Letter.pdf

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Step Three: Support the Process of Authentic Family Engagement and Involvement


Resource Name: Universal Design for Learning (UDL)
Source: National Center on Universal Design for Learning
Type: Link
View:
http://www.udlcenter.org/aboutudl/whatisudl

Resource Name: Tips for Using a Focus Group Format in a PFAC Meeting
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step3_Tips-for-Focus-Group-Meeting-Format.pdf

Resource Name: Helpful Phrases for Facilitating Focus Groups
Source: Bright Futures for Families
Type: PDF
View:
http://www.brightfuturesforfamilies.org/Webinars/Helpful%20Phrases%20for%20Facilitators.pdf

Resource Name: Facilitating Successful Family Focus Groups - Best Practices
Source: Bright Futures for Families
Type: PDF [Slides, Tips Sheet] and Link [Webinar Recording]
View Slides (PDF): http://www.brightfuturesforfamilies.org/Webinars/IMPACT-FacilitatingFocus%20GroupsPPT_reduced.pdf
View Tips Sheet (PDF): http://www.brightfuturesforfamilies.org/Webinars/IMPACT-FacilitatingFamilyFocusGroupsTipSheet.pdf
View Webinar Recording (Link): https://www323.livemeeting.com/cc/familyvoices/view?id=695NT

Resource Name: Powerful Partnerships: A Handbook for Families and Providers Working Together to Improve Care
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: Link
View:
http://www.nichq.org/resources/powerful_partnerships.html

Resource Name: Characteristics of Effective Family Advisors
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step3_Characteristics-of-Effective-Family-Advisors.pdf

Resource Name: Exercise--Storytelling to Make a Difference
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step3_Exercise-Storytelling.pdf

Resource Name: True Colors
Source: True Colors International
Type: Link
View:
http://www.true-colors.com/content.php

Resource Name: Exercise--Deep Listening
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step3_Exercise-Deep-Listening.pdf

Resource Name: Exercise--Understanding Difficult Conversations
Source: Difficult Conversations by Douglas Stone, Bruce Patton & Sheila Heen
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step3_Exercise-Understanding-Difficult-Conversations.pdf

Resource Name: Exercise--The Feelings Conversation
Source: Nonviolent Communication: A Language of Compassion by Marshall B. Rosenberg
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step3_Exercise-Feelings-Conversation.pdf

Resource Name: Exercise--The "What I Really Want" Conversation Method
Source: Crucial Conversations by Patterson, Grenny, McMillan & Switzler
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step3_Exercise-Focus-On-What-You-Really-Want.pdf

Resource Name: Exercise--The ORID Conversation Technique
Source: Institute for Cultural Affairs
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step3_Exercise-ORID-Conversation-Technique.pdf

Resource Name: Technology of Participation
Source: Institute for Cultural Affairs
Type: Link
View:
http://www.ica-usa.org/?page=whatistop

Resource Name: Exercise--Early Memories
Source: South West Center for Intercultural Leadership
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step3_Exercise-Early-Memories.pdf

Resource Name: Exercise--The Brick Wall and the Gateway
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step3_Exercise-Brick-Wall.pdf

Resource Name: National Center for Cultural Competence (NCCC)
Source: National Center for Cultural Competence
Type: Link
View:
http://nccc.georgetown.edu/

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Step Four: Sustain and Evaluate Your PFAC


Resource Name: PFAC Sustainability Worksheet
Source: National Initiative for Children's Healthcare Quality (NICHQ)
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step4_PFAC-Sustainability-Worksheet.pdf

Resource Name: Consumer Involvement Toolkit
Source: Consumer Quality Initiatives, Inc.
Type: PDF
View:
http://www.medicaid.gov/mltss/docs/consumer_involvement_toolkit.pdf

Resource Name: The Working Scale for Consumer Involvement (WSCI): Developing and Monitoring Health Care Systems and Programs [Abstract]
Source: Reservoir Consulting Group
Type: PDF
View:
http://reservoircg.org/uploads/2/9/1/1/2911062/abstract-_working__scale_for_consumer_involvement.pdf

Resource Name: Medical Home Index
Source: The Center for Medical Home Improvement
Type: Link
View:
http://www.medicalhomeimprovement.org/pdf/CMHI-MHI-Pediatric_Full-Version.pdf

Resource Name: Family-Centered Care Self-Assessment Tool
Source: Family Voices
Type: PDF
View:
http://www.familyvoices.org/admin/miscdocs/files/fcca_ProviderTool.pdf

Resource Name: Pediatric Medical Home Family Index and Survey
Source: The Center for Medical Home Improvement
Type: PDF
View:
http://www.medicalhomeimprovement.org/pdf/Pediatric-Medical-Home-Family-Index-Survey_2005.pdf

Resource Name: Checklist for Measuring Perception of Feedback Opportunities
Source: Institute for Patient- and Family-Centered Care
Type: PDF
View:
http://www.nichq.org/resources/PFAC-Toolkit/references/PFAC_Step4_Measuring-Perception-of-Feedback-Opportunities.pdf

Resource Name: The Model for Improvement
Source: Associates in Process Improvement
Type: Link
View:
http://www.apiweb.org/API_home_page.htm

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