Toolkit for Providers Serving Children with Epilepsy
Partner with Families in Preparing the Seizure Action Plan
What We Learned
• Families want information from the very beginning about what to do when their child has a seizure.
• Families need a tool that they can share with other family members, caregivers and schools about what to do when a seizure occurs.
• Knowing what to do increases caregiver confidence when children with epilepsy are in their care.
• Families want to partner with their providers in completing the seizure action plan to ensure that the plan is practical for them.
What We Did
• Developed systems so that families started receiving Seizure Action Plans the same day of their visit to their PCP or specialist or shortly after.
• Ensure the family left the visit with their own copy of the Seizure Action Plan.
• We placed copies into the electronic medical record.
• We developed ways to have the seizure action plan in a drop down menu in the electronic medical record.
• Providers worked to find time in the clinic visit schedule to work with families on completing plans.
Questions for My Practice
• Do we routinely provide seizure action plans for children with epilepsy?
• Do we have enough options for seizure action plans to meet the cultural and language needs of our patient population?
• Is the seizure action plan available for all levels of literacy? If the family asks for help either completing the form or getting more information, do I have some resources to recommend?
• Do we routinely involve families in the completion of plans?
Changes to Try in My Practice
• Complete a seizure action plan for all children in the practice with epilepsy.
• Work with families to complete the seizure action plan, and ensure the plan will work for them.
• Check that the seizure action plan being used is in the family’s preferred language, and at the appropriate literacy level.
• Partner with the school nurse to help develop and maintain the seizure action plan.
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