Toolkit for Providers Serving Children with Epilepsy
Involve Families in Quality Improvement (QI) Activities in Your Practice
What We Learned
• Families have many valuable ideas for improving the quality of service delivery.
• Families bring a “systems” perspective to quality improvement work, having first-hand experience not just of care within one provider’s practice, but of the whole system of care including PCPs, specialists, interventionists and support services.
• Families want to be involved in quality improvement, not just in a “token” way, but actively suggesting and leading improvement initiatives.
What We Did
• All NICHQ Collaboratives have parent and provider co-chairs that work equally to lead the quality improvement effort.
• Created Powerful Partnerships, a guide to help both family members and healthcare professionals who are working together on improvement teams
Questions for My Practice
• Are we involving families at all levels of our quality improvement activities?
• Are there any QI projects that families in our practice are leading?
• Do we have a mechanism where families can make suggested improvements to our practice?
Changes to Try in My Practice
• Invite 2 family members to participate in each QI activity underway in the practice.
• Ensure families have active roles.
• Create a mechanism for families to be able to give improvement suggestions to the practice.
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