Toolkits for Providers and Families of Children with Epilepsy
The tips and tools presented here were collected as part of learning collaboratives that were funded by the Maternal and Child Health Bureau (MCHB) at the Health Resources and Services Administration (HRSA) in the U.S. Department of Health and Human Services. Through learning collaboratives such as the Improving the System of Care (ISC) for Children and Youth with Special Healthcare Needs, the Newborn Hearing Screening Learning Collaborative, and Project ACCESS (Epilepsy), NICHQ and the MCHB developed a successful framework for partnerships among state Title V leaders, clinical teams and families in quality improvement work to assist Children and Youth with Special Healthcare Needs and their families. These collaboratives identified and tested a number of tools that families and providers could use to support quality improvement within systems of care.
Click HERE for a full introduction to the Improving the Systems of Care (ISC) toolkits
We have divided the most promising tips and tools developed in the ISC collaboratives into a series of toolkits. Please click on the links to access the toolkit most relevant to your work. Many of these tools and tips are relevant for all CYSHCNs, not just those with epilepsy or hearing loss. Please explore all of our toolkits, and let us know where we can make improvements.
Click HERE to see all toolkits related to Improving the Systems of Care (ISC) for Children and Youth with Special Healthcare Needs.
We hope you find these tools useful and invite you to provide feedback to Karen Errichetti, Senior Project Manager for Evaluation, at firstname.lastname@example.org.
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Toolkit for Providers Serving Children with Epilepsy
Toolkit for Families of Children with Epilepsy
The materials assembled in these toolkits were developed over the course of several collaborative projects funded by the Maternal and Child Health Bureau (MCHB) Division of Services for Children with Special Health Needs at the Health Resources and Services Administration (HRSA) including cooperative agreement #U23MCO3889 and the following contracts: HHSH240200735007C, HHSH240200535016C and HHSH250201000021C