Content Development for Newborn Screening Clearinghouse
Develop and maintain educational information on newborn screening for the Health Resources and Services Administration’s Newborn Screening Clearinghouse website. This information will increase awareness about the critical importance of newborn screening among all stakeholders and will help parents and caregivers navigate the screening process.
September 2018 to September 2023
- Who: NICHQ is partnering with Genetic Alliance, a newborn screening content expert and leading national health organization, to develop, revise and deliver general, state-specific and condition-specific newborn screening web page content.
- Funder: The project is funded by the Health Resources and Services Administration.
- Our Role: NICHQ will provide overall project direction and management, including coordinating communications with HRSA, ensuring IT security compliance, and managing and maintaining a strategic workplan that facilitates the creation of timely, relevant and user-friendly web-content.
If you are interested in learning more about this project please email firstname.lastname@example.org.
Children’s Health Policy Update: Fall 2019
As 2019 draws to a close, we’re sharing an update on policies and public programs that impact children’s health outcomes. We’ve included breastfeeding legislation passed over the summer, important legislation to watch in the coming months, and insights on vital public programs and funding needs for fiscal year 2020.
National Action Teams Promote Safe Sleep and Breastfeeding Across the Country
Over the past decade, improvements in sleep-related infant deaths have stagnated. Now, four national action teams are working together to drive measurable change in four priority areas: Aligning National, State and Local Efforts; Promoting Conversation Modules; Supporting Early Child Care and Education; and Public Media and Media Relations.
NICHQ Employee Spotlight: Sandra Widland
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Breastfeeding Takes a Village and, Too Often, Black Women Don’t Have One
Breastfeeding peer support networks run for and by Black women fill a gap in breastfeeding support for Black women—a gap largely created by historic and systemic inequities. Here, Khadija Garrison Adams, co-founder of Black Lactation Circle (BLaC) of Central Ohio, shares how their community is empowering black pregnant and nursing mothers to meet their breastfeeding goals.
Ohio’s Multi-Pronged Approach to Addressing the Opioid Crisis
The Ohio Perinatal Quality Collaborative is testing innovative strategies for improving outcomes for the thousands of families affected by the opioid crisis. Here, they share their approach, including standardizing identification and treatment for opioid exposed infants in NICUs, encouraging compassionate responses from providers, and ensuring comprehensive, coordinated maternity care.
Eliminating Sleep-Related Infant Deaths Starts by Identifying What Causes Them
Understanding what causes infant deaths gives states and communities the information they need to identify focused, effective solutions. This makes infant mortality data—data that reveals the causes and contributors to death and system barriers—irreplaceable assets for any infant health improvement effort. And that makes the National Center for Fatality Review and Prevention (National CFRP) an essential partner.