Florida Children’s Medical Services Learning and Action Network
By building the quality improvement capacity of specialty programs, this learning and action network will grow and support a high-quality system of care in Florida that serves all children and youth with special healthcare needs, regardless of insurance status and location.
January 2019 to August 2020
- Who: NICHQ is partnering with the Florida Department of Health and seven specific Statewide Networks for Access and Quality: kidney failure; craniofacial/cleft lip and palate; diabetes; hematology/oncology; HIV/AIDS; pulmonary; and behavioral health. These seven networks represents 33 institutions.
- Funder: The project is funded by the State of Florida Department of Health
- Our Role: NICHQ is leading a learning and action network (LAN) for seven SNAQ teams to improve the quality and access to care for children and youth with special healthcare needs. NICHQ facilitates LAN goals through teaching and supporting the application of the Model for Improvement to increase quality improvement capacity of participating SNAQ teams.
Supporting the Whole Family: Fathers in Infant Health Outcomes
Cam, a father in Massachusetts, wants to lift the message that supporting the whole family is essential to child development. After becoming a father at 16, Cam connected to some community-based resources but says that more targeted efforts should be made available to fathers. Here, he shares a story that raises issues about fathers’ barriers to support and resources — and the impact of their engagement on child health outcomes.
Coordinated Systems Are Key to Addressing Rising Preterm Birth Rates
Sovannah, a mother of three in Kansas, is an advocate for systems-level change. During her third pregnancy, she connected with a network of supports that she says completely changed her family’s experience. Here, she shares her story that sheds light on the powerful potential of coordinated systems — for reducing preterm births and for strengthening families.
The Great READ: Reading, Exchange and Dialogue
At the beginning of the year, NICHQ’s staff came together to share the books that have most impacted their understanding of equity and what’s needed to achieve it. Below, we share their top picks with hope that this list will support our readers on their equity journeys.
NICHQ Employee Spotlight: Jordan-Tate Thomas
Each month, we’re shining a spotlight on a NICHQ employee. Here, Analyst Jordan-Tate Thomas shares how her passion for improving health outcomes for underserved children and families led her to join a national children's health organization.
NICHQ Employee Spotlight: Joshua Licursi
Each month, we’re shining a spotlight on a NICHQ employee. Here, Communications Specialist Joshua Licursi shares how his work at NICHQ combines his life-long passion for communications with public health marketing.
Continuing Sickle Cell Disease Care During the COVID-19 Pandemic
People who have sickle cell disease and very vulnerable to COVID-19 impact. As we enter the fourth month of the pandemic in the U.S., we’re sharing how providers and advocates have remained nimble to ensure that comprehensive and consistent care is maintained throughout the pandemic and beyond.