Improved Hearing Screening and Intervention Services (IHSIS)
A series of collaborative improvement projects to increase the rate of documented follow-up and intervention services for infants with hearing loss.
The multiple collaborative projects ran from 2010 to 2013.
- Who: Early Hearing Detection and Intervention (EHDI) offices representing 28 states, the District of Columbia, Puerto Rico and the U.S. Virgin Islands, in collaboration with parent partners, audiologists and other healthcare professionals and advocates.
- Funder: This project was funded by the Health Resources and Service Administration’s Maternal and Child Health Bureau.
- Our Role: Facilitated Breakthrough Series learning collaboratives to apply quality improvement methodology to improve the systems of care for children with hearing loss.
What IHSIS Project Participants Say
Working with NICHQ has been a very rewarding experience … A partnership with families has been a hallmark of what the Maternal and Child Health Bureau has done for years, but NICHQ really demonstrated how important those partnerships are.
Being involved with NICHQ has been a career-changing and life-altering experience in many ways. Quality improvement methodology is not additive to my work, it influences how I do my daily work.
At the beginning we thought that it'd be another project or another thing to do in our list of things we're supposed to do. But actually what I've learned is this is a better way to do things—a faster, better and effective way. You have to have a goal and objectives. When you work through the process we've been learning at NICHQ, everything is very efficient.
Prior to the working with NICHQ, we had had some broad areas of focus for our plan for the year, but really had no strategy or mechanism for testing whether a change that we implemented was an improvement. And we’d always implement statewide before knowing if the change was beneficial. I’ve seen other participants in NICHQ projects make a similar shift and now think about how things are possible instead of impossible.
Supporting the Whole Family: Fathers in Infant Health Outcomes
Cam, a father in Massachusetts, wants to lift the message that supporting the whole family is essential to child development. After becoming a father at 16, Cam connected to some community-based resources but says that more targeted efforts should be made available to fathers. Here, he shares a story that raises issues about fathers’ barriers to support and resources — and the impact of their engagement on child health outcomes.
Coordinated Systems Are Key to Addressing Rising Preterm Birth Rates
Sovannah, a mother of three in Kansas, is an advocate for systems-level change. During her third pregnancy, she connected with a network of supports that she says completely changed her family’s experience. Here, she shares her story that sheds light on the powerful potential of coordinated systems — for reducing preterm births and for strengthening families.
Pediatric Telehealth Strategies During and Post (?) the COVID-19 Pandemic
This is the second webinar in a series on supporting health during and after the COVID-19 pandemic.
Across the country, health and social service providers have had to find new ways to support children and families in the face of COVID-19. Home visiting services, pediatric well-child visits, prenatal care, and mental health appointments have largely had to transition from in-person appointments to visits virtually—either via phone or video. At the same time, the pandemic has worsened and added to stressors that make these services even more necessary, namely increased effect of institutional bias combined with COVID-19’s impact on those living with chronic conditions.
- Describe the trends in telehealth use for pediatrics during the pandemic
- Articulate how patient-centered care can be enhanced with the use of telehealth
- Explore innovative models of telehealth care
About the speakers
- James McElligott, M.D., MSCR, Medical Director for Telehealth at the Medical University of South Carolina (MUSC), Associate Professor in the Division of General Pediatrics at MUSC Children’s Hospital
- Reneé Canady, PhD, MPA, CEO of the Michigan Public Health Institute (MPHI)
- Scott D. Berns, MD MPH, NICHQ’s CEO and Project Lead for the COVID-19 Enhancement Project
- Judith Gooding, NICHQ Senior Advisor and Project Director for the COVID-19 Enhancement Project
This webinar is part of the COVID-19 Enhancement Project, an extension of Disseminating Results: Missed Sickle Cell Disease Clinic Appointments and the Health Belief Model Enhancement Project, which is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EADI-14446).
Explore HRSA’s New Newborn Screening Information Center
To increase awareness, knowledge, and understanding of newborn screening and genetic conditions, NICHQ partnered with Genetic Alliance, a newborn screening content expert and leading national health organization, to develop, revise and deliver general, state-specific and condition-specific newborn screening website content.
NICHQ CEO, Co-authors Call for Reframing the Obesity Prevention Narrative
On Oct. 17, 2020, an article published in Maternal and Child Nutrition calls for a holistic life-course approach to childhood obesity prevention that includes an equitable developmental perspective. “Reframing the early childhood obesity prevention narrative through an equitable, nurturing approach” was coauthored by Scott D. Berns, MD, MPH, FAAP, President and CEO of the National Institute for Children’s Health Quality (NICHQ).
Safe Sleep 101
Welcome to NICHQ’s official guide to ensuring safe infant sleep! In honor of National Sudden Infant Death Syndrome (SIDS) Awareness Month, we’re providing you with the tools and knowledge to work toward eliminating SIDS and other sleep-related deaths. Below, you’ll find strategies and interactive resources to promote safe infant sleep guidelines, along with lessons learned to empower health professionals, community advocates, and families across the country to be champions of safe sleep.
Lesson 1: Master the Basics
The first step to preventing SIDS and other sleep-related deaths is to understand and utilize the most up-to-date, evidence-based recommendations for safe infant sleep. Not sure where to start? In this handout, you’ll learn:
- The definition of SIDS and how to reduce the risk of sleep related infant deaths
- How to create a safe sleep environment
- Strategies for promoting safe sleep messaging to health professionals, child care programs, and ultimately, parents and family members
Lesson 2: Knowledge is Power
Every new person who learns about safe infant sleep is one more person who can promote safe infant sleep guidelines. Help build collective knowledge across the country by sharing safe infant sleep information all month and beyond using these resources:
Lesson 3: Leverage Successful Strategies
Finding strategies to eliminate sleep-related deaths doesn’t require reinventing the wheel. That’s why we’re sharing a comprehensive literature review and specific examples of promising resources, programs, and interventions states can spread and scale to reduce sleep-related infant deaths. View both resources here.
Lesson 4: Prioritize Equity
Black families are twice as likely as white families to experience their baby’s death in the first year of life. These statistics represent real families who suffer unimaginable loss—loss that stems from the persistent effects of systemic racism on the health of Black families. In this article, we’re sharing recommendations from three experts on how health professionals and improvement initiatives can better support the health and well-being of Black families.
Be a Children's Health Change Agent
Like you, we have a shared passion for improving the health of every child in every state across the country. Join us in our mission. Take action to make a difference for children now and in the decades to come:
- Donate. Give a gift that supports NICHQ’s initiatives that touch millions of children’s lives. Every dollar raised benefits the health and well-being of children.
- Sign up. Join our network of thousands of other subscribers. We deliver resources, articles and webinars right to your inbox so that we can drive change in children’s health outcomes together.
- Spread the word about children’s health initiatives, advocacy and the stories that inspire systems-level change. Share our monthly message on Facebook and Twitter.