Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program National Coordinating Center

In the past several decades, clinicians, public health professionals, and those with lived experience have seen advancements in Sickle Cell Disease (SCD) treatments and research that have significantly improved outcomes and increased life expectancies for people living with SCD. For example, the FDA-approved medication hydroxyurea (HU) has been recommended as a SCD standard of care due to its ability to help people with SCD mitigate pain and the need for blood transfusions. Preventative measures, such as screening children and adolescents for risk of stroke and ensuring that all people who have SCD receive recommended vaccinations, have also been instrumental in reducing complications associated with SCD. And recently, development of gene therapies has presented possibilities of a new cure. Conversations on how to improve access to care should continue, and these three recommendations begin with some of the most pressing needs.

Macy Parakh (she/her) is a Marketing Communication Intern Summer 2022 at NICHQ. She is a Master of Public Health (MPH) student at Boston University School of Public Health (BUSPH). Macy is studying Community Assessment, Program Design, Implementation, and Evaluation (CAPDIE) and Maternal and Child Health (MCH). She is originally from Toronto, Canada. Macy has a bachelor's degree in Communications from McMaster University. When Macy isn’t studying or working, she can be found baking, dancing, and spending time with her dog.

Madeline D’Onfro (she/her) is an intern on NICHQ’s HNCC Project this Summer. After growing up in Massachusetts, Madeline spent seven years living in Boise, Idaho and has now returned to the Northeast to pursue her Master in Public Health at Boston University. She is concentrating her studies in Community Assessment and Program Design and Maternal and Child Health. Madeline’s Summer QI project is to increase her average running mileage. In her free time Madeline enjoys hiking, cycling, and any other activity that allows her to be outdoors!  

Lyndsay Brooks (she/her) is a 2022 summer intern on NICHQ’s Marketing and Communications Team. Originally from Davidsonville, MD, Lyndsay is now a Master’s of Public Health student at Boston University (BU) studying Health, Policy, and Law and Maternal and Child Health (MCH). Lyndsay brings with her a background in public health, Medicaid policy, and pediatric healthcare. When she is not studying or working, she enjoys baking, knitting, and hiking. This summer, as a part of her Personal Quality Improvement Project, Lyndsay has also been training for a 5K.  

Elyse Anderson (she/her) is a Healthy Start Intern Summer 2022 at NICHQ. She is a Master of Public Health student at Boston University School of Public Health (BUSPH). Elyse is studying Community Assessment, Program Design, Implementation, and Evaluation (CAPDIE) and Maternal and Child Health (MCH).  She is from a town outside of Minneapolis, Minnesota.  Elyse has a Bachelor’s degree in Communication Disorders. After her undergraduate studies, Elyse worked at a children’s hospital in pediatric audiology. Elyse is the middle child of five. Her older brother has Autism, which has inspired her interest in pediatric public health work. Elyse’s summer QI project is on developing healthy morning habits to increase her productivity throughout the day. 

Lucia (Lucy) Burzynski (she/her) is a Marketing and Communications Intern this Summer at NICHQ. Born and raised in Milwaukee, she is currently a Master of Public Health student at Boston University specializing in Community Assessment and Program Design and Maternal and Child Health. Her Summer QI project is centered around spending more time with friends. Outside of her internship and school Lucy enjoys watching basketball, going for walks, and singing.