Working to Improve Sickle Cell Healthcare (WISCH)
Two programs—the Sickle Cell Disease Newborn Screening Program (SCDNBSP) and the Sickle Cell Disease Treatment Demonstration Program (SCDTDP)—aimed at improving screening and follow-up for those who have tested positive for sickle cell disease and trait, and improving care across the lifespan.
SCDNBSP: June 2011 to May 2015. SCDTDP: September 2010 to September 2014.
- Who: The SCDNBSP involved six teams comprised of federally qualified community health centers and other primary care sites, comprehensive sickle cell treatment centers and community-based organizations. The SCDTDP consisted of nine teams comprised of community centers, doctors, sickle cell departments, emergency room coordinators, parents and patients.
- Funder: The project was funded by HRSA and in partnership with the Boston Medical Center and the Sickle Cell Disease Association of America.
- Our Role: Facilitated a Breakthrough Series learning collaborative to apply quality improvement methodology to sickle cell disease care and education in a variety of settings. Led the development of expert-reviewed quality measures for sickle cell disease (e.g. acute care measures). We also served as the National Coordinating Center for SCDTDP and the National Coordinating and Evaluation Center for SCDNBSP. In these roles, we collected, monitored and distributed best practice data and findings, identified protocols for the treatment of sickle cell disease and related complications, and identified and disseminated educational materials related to sickle cell disease.
Implicit Bias Resource Guide
Recognizing and addressing biases is a critical step towards eliminating health disparities and achieving health equity. In this brief, you’ll find three resources to support your work to address your own implicit biases: seven steps we can all take to minimize implicit bias; A Q&A with health experts about how to recognize and address implicit bias; and a selection of stories shared with NICHQ about the many ways bias has affected individuals.
National Minority Health Month Social Media Graphics
We've put together a small collection of social media graphics to help raise awareness about some of the health concerns facing minority families. Download them to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.
Maternal Depression: First Steps
This issue brief will help mothers, families and family advocates understand the signs of maternal depression, the interdependence between caregiver-child health and well-being, and provides guidance on how mothers can connect with their pediatricians to get the help they need to heal.
Data-for-Equity Research Brief
Child care is unaffordable for the majority of working parents, especially for low-income and black and Hispanic working parents. This research brief provides insight and analysis about the challenges families face in affording childcare, which can underpin inequities in early childhood health and development.
Early Childhood Data in Action
Three case studies from communities leveraging data to improve early childhood outcomes. Specifically, readers will uncover how to develop a culture of data collection, build local capacity, and use data to inform critical public policy decisions.
Metrics for Early Childhood Systems: A National Scan
This report provides the results of a national scan of metrics used by early childhood systems and initiatives to assess the well-being of young children and their families. Along with a detailed list of all metrics scanned, the report includes observations and recommendations about the state of early childhood data, an overview of common challenges, and recommendations about the most important opportunities to advance measurement and data use in the field of early childhood development and care.
“The Act of Making a Referral is Not Enough”
Universal developmental screenings can help identify children at risk for developmental delays and connect them with needed supports. An effective screening process relies on successful referrals though—if there is no follow-up with the referred child, families can never access the supports the child may need, and that child may ultimately fall through the cracks. Here, Dipesh Navsaria, MPH, MSLIS, MD, Associate Professor of Pediatrics at the University of Wisconsin School of Medicine and Public Health provides five steps to build a referral process that works.
Neonatologist Shares Successful Strategies for Improving Infant Health Outcomes
Babies born in the United States have a higher chance of death than babies born in more than 50 other countries in the world. Harnessing lessons-learned from successful improvement initiatives can help hospitals and state health systems address this alarming statistic. Here, pioneer for improvement Deborah Campbell, MD, FAAP, shares strategies and lessons-learned from three successful improvement efforts: improving nutrition protocols for preterm infants; spreading safe sleep messages to reduce infant deaths; and testing strategies to lower rates of maternal hemorrhage, and related mortality and morbidity.
Eliminating the Consequences of Maternal Depression
Experts from the Brookings Institution, the U.S. Preventive Services Task Force, the Medical University of South Carolina and Postpartum Support Charleston analyze the impact of maternal depression on children and families, and offer strategies health professionals can take to ensure that more mothers are screened and referred to support and resources.
NICHQ Employee Spotlight: Pat Heinrich
In honor or our 20th anniversary, we're sharing insights, memories and goals from the NICHQ team. Here, NICHQ Executive Project Director Pat Heinrich shares her biggest lessons-learned and biggest laughs while working at NICHQ.
Providing Developmental Screenings and Services in Rural Communities
Families in rural communities across the country face unique barriers to supporting their children’s developmental health and well-being. Here, learn how community coalitions in Alaska are connecting families to needed supports and services, so more rural children can start school ready to succeed.
It Takes a Community to Save Babies
By partnering with community programs and organizations, public health initiatives can give families opportunities to learn about safe sleep from trusted members of their community who share their lived experience. Here, find six strategies for engaging community partners, maintaining that partnership, and collaborating to raise awareness.