Working to Improve Sickle Cell Healthcare (WISCH)
Two programs—the Sickle Cell Disease Newborn Screening Program (SCDNBSP) and the Sickle Cell Disease Treatment Demonstration Program (SCDTDP)—aimed at improving screening and follow-up for those who have tested positive for sickle cell disease and trait, and improving care across the lifespan.
SCDNBSP: June 2011 to May 2015. SCDTDP: September 2010 to September 2014.
- Who: The SCDNBSP involved six teams comprised of federally qualified community health centers and other primary care sites, comprehensive sickle cell treatment centers and community-based organizations. The SCDTDP consisted of nine teams comprised of community centers, doctors, sickle cell departments, emergency room coordinators, parents and patients.
- Funder: The project was funded by HRSA and in partnership with the Boston Medical Center and the Sickle Cell Disease Association of America.
- Our Role: Facilitated a Breakthrough Series learning collaborative to apply quality improvement methodology to sickle cell disease care and education in a variety of settings. Led the development of expert-reviewed quality measures for sickle cell disease (e.g. acute care measures). We also served as the National Coordinating Center for SCDTDP and the National Coordinating and Evaluation Center for SCDNBSP. In these roles, we collected, monitored and distributed best practice data and findings, identified protocols for the treatment of sickle cell disease and related complications, and identified and disseminated educational materials related to sickle cell disease.
Core Practices, Strategies, and Resources for Supporting Social Emotional Development in Pediatric Care
In this packet, we’re outlining the best strategies to support emotional development for participating practices so that pediatric providers across the country can benefit from their learnings
National Breastfeeding Month Social Media Toolkit
In recognition of National Breastfeeding Month, we’ve put together a collection of social media posts and graphics that can be used to raise awareness about the importance and benefits of breast milk, as well as empower and support all mothers to achieve their breastfeeding goals. Download the toolkit to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.
Mental Health Awareness Month Social Media Resources
In recognition of Mental Health Awareness Month, we’re sharing a social media toolkit and infographic to raise awareness and share resources that can change the way the world sees mental health. Download these resources to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.
Census Social Media Toolkit
We’ve put together a collection of social media posts and graphics to help you encourage families to participate in the census. Use these posts on your own social channels to connect with families and prevent children from being undercounted. Make sure to tag @NICHQ so we can like and share your post.
National Minority Health Month Social Media Toolkit
In recognition of National Minority Health Month, we’re sharing a social media toolkit and infographic to raise awareness about racial and ethnic disparities and the need to achieve health equity. Download these resources to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.
Rare Disease Day Social Media Toolkit
Use this social media toolkit with infographics, images and sample posts sharing key statistics and facts that illustrate the impact rare diseases have on over 25 million Americans. Share the toolkit with your colleagues and use it yourself on Rare Disease Day on Feb. 29, 2020
The Great READ: Reading, Exchange and Dialogue
At the beginning of the year, NICHQ’s staff came together to share the books that have most impacted their understanding of equity and what’s needed to achieve it. Below, we share their top picks with hope that this list will support our readers on their equity journeys.
NICHQ Employee Spotlight: Jordan-Tate Thomas
Each month, we’re shining a spotlight on a NICHQ employee. Here, Analyst Jordan-Tate Thomas shares how her passion for improving health outcomes for underserved children and families led her to join a national children's health organization.
NICHQ Employee Spotlight: Joshua Licursi
Each month, we’re shining a spotlight on a NICHQ employee. Here, Communications Specialist Joshua Licursi shares how his work at NICHQ combines his life-long passion for communications with public health marketing.
Continuing Sickle Cell Disease Care During the COVID-19 Pandemic
People who have sickle cell disease and very vulnerable to COVID-19 impact. As we enter the fourth month of the pandemic in the U.S., we’re sharing how providers and advocates have remained nimble to ensure that comprehensive and consistent care is maintained throughout the pandemic and beyond.
An Introduction to Measuring Reliability
Measuring reliability enables us to understand the effectiveness of our health systems and initiatives and discover where improvements are needed. Not sure where to start? We're sharing an introduction to measuring and increasing reliability in your projects and initiatives.
Making Fathers Visible in Maternal and Child Health
From cognitive and social emotional development to education and accomplishments, children with involved fathers achieve better health outcomes. Yet despite fathers’ positive impact on maternal and child health, many of the systems intended to serve women and children were not designed with fathers in mind. That’s why we’re sharing strategies to increasing father involvement in early childhood programs.