Working to Improve Sickle Cell Healthcare (WISCH)
Two programs—the Sickle Cell Disease Newborn Screening Program (SCDNBSP) and the Sickle Cell Disease Treatment Demonstration Program (SCDTDP)—aimed at improving screening and follow-up for those who have tested positive for sickle cell disease and trait, and improving care across the lifespan.
SCDNBSP: June 2011 to May 2015. SCDTDP: September 2010 to September 2014.
- Who: The SCDNBSP involved six teams comprised of federally qualified community health centers and other primary care sites, comprehensive sickle cell treatment centers and community-based organizations. The SCDTDP consisted of nine teams comprised of community centers, doctors, sickle cell departments, emergency room coordinators, parents and patients.
- Funder: The project was funded by HRSA and in partnership with the Boston Medical Center and the Sickle Cell Disease Association of America.
- Our Role: Facilitated a Breakthrough Series learning collaborative to apply quality improvement methodology to sickle cell disease care and education in a variety of settings. Led the development of expert-reviewed quality measures for sickle cell disease (e.g. acute care measures). We also served as the National Coordinating Center for SCDTDP and the National Coordinating and Evaluation Center for SCDNBSP. In these roles, we collected, monitored and distributed best practice data and findings, identified protocols for the treatment of sickle cell disease and related complications, and identified and disseminated educational materials related to sickle cell disease.
Resource for Improving Relationships Between Providers and People Living with Sickle Cell Disease
Too often, people living with Sickle Cell Disease (SCD) and their families and caregivers miss critical healthcare appointments for a variety of reasons. These important resources and tools can be used to guide efforts to improve relationships between providers and people living with SCD.
Mental Health Awareness Month Social Media Toolkit
Mental Health Awareness Month is celebrated to fight stigma, educate the public, and advocate for policies that support people with mental illness. We’ve put together an online collection of social media posts and graphics to outline the significant role mental health plays in overall health and wellness and promote better mental health for children, families, and caregivers.
Addressing Early Childhood Health Equity in Communities and States
Early Childhood Health Equity (ECHE) work seeks to strengthen early childhood systems to support healthy child development and reduce health inequities and disparities that can have a lifelong impact. These briefs synthesize the recent work of the ECHE Landscape Project and highlight the themes and findings that emerged across the project activities.
National Infant Immunization Week 2021 Infographics
Since the beginning of the COVID-19 pandemic, millions of children throughout the country have missed routine vaccinations. Vaccination is one of the best ways parents can protect infants, children, and teens from serious, highly contagious diseases, including measles, whooping cough and polio. During National Immunization Week, use these infographics to raise awareness about missed vaccinations and educate families on the importance of timely infant and child vaccinations.
Safe Infant Sleep and Breastfeeding Myths and Facts
Pediatricians, family physicians, and other health care providers can use these documents during conversations with families to address myths and facts about safe infant sleep and breastfeeding.
National Minority Health Month Social Media Toolkit
In recognition of National Minority Health Month, we’re sharing a social media toolkit and infographic to raise awareness about racial and ethnic disparities and the need to achieve health equity. Download these resources to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.
Exploring a Nonbinary Approach to Health
NICHQ is not abandoning the traditional use of the terms “mother” and “maternal.” We are embracing the inclusive language of “birthing person/people” across our work. A move toward inclusive language does not force us to stop using language that so many people identify with; at its core, inclusion is about creating more space for one another. We are taking care to expand the use of these terms in our communications, on our website, in our resources, and eventually, in all our projects.
NICHQ Employee Spotlight: Stacey C. Penny
With NICHQ's Rare As One Network Workstream Facilitation Initiative at a halfway point, Senior Project Director Stacey C. Penny, MSW, MPH shares an inside look at one of NICHQ's most collaborative projects.
Are Screens Making our Children’s Eyes Worse?
Even before the COVID-19 pandemic, children of all ages were spending more screen time than ever before on cellphones, tablets, and laptops. Prolonged periods of time staring at a screen that may be too big, too bright, or too close to our eyes can cause eye fatigue or even lead to dry eye, a chronic eye condition common in older adults. With eye conditions becoming more prominent in children, it's important for health professionals to encourage healthy screen viewing habits and support children’s eye health in the digital age.
NICHQ Employee Spotlight: Olivia Giordano
Olivia Giordano, MPH, Project Manager shares how her work with NICHQ’s Supporting Healthy Start Performance Project (SHSPP) is supporting 101 Healthy Start community sites to harness lessons learned, implement innovative approaches to improvement, and ultimately start to close the disparity gap in maternal and child health.
It Starts with Us and It Starts Now: Healing for Moms and Babies Begins with Ourselves and Our Systems
NICHQ CEO Scott D. Berns, MD, MPH, FAAP shares a message on healing and the ongoing need for equity-designed systems in 2021 and beyond.
Safe Sleep and Breastfeeding Initiative Invites Advocates to Join Communities of Practice
A multi-year initiative to improve infant safe sleep and breastfeeding is launching sector-specific Communities of Practice in 2021 to address policies, improve skills, and learn from other advocates’ experiences.