Working to Improve Sickle Cell Healthcare (WISCH)
Two programs—the Sickle Cell Disease Newborn Screening Program (SCDNBSP) and the Sickle Cell Disease Treatment Demonstration Program (SCDTDP)—aimed at improving screening and follow-up for those who have tested positive for sickle cell disease and trait, and improving care across the lifespan.
SCDNBSP: June 2011 to May 2015. SCDTDP: September 2010 to September 2014.
- Who: The SCDNBSP involved six teams comprised of federally qualified community health centers and other primary care sites, comprehensive sickle cell treatment centers and community-based organizations. The SCDTDP consisted of nine teams comprised of community centers, doctors, sickle cell departments, emergency room coordinators, parents and patients.
- Funder: The project was funded by HRSA and in partnership with the Boston Medical Center and the Sickle Cell Disease Association of America.
- Our Role: Facilitated a Breakthrough Series learning collaborative to apply quality improvement methodology to sickle cell disease care and education in a variety of settings. Led the development of expert-reviewed quality measures for sickle cell disease (e.g. acute care measures). We also served as the National Coordinating Center for SCDTDP and the National Coordinating and Evaluation Center for SCDNBSP. In these roles, we collected, monitored and distributed best practice data and findings, identified protocols for the treatment of sickle cell disease and related complications, and identified and disseminated educational materials related to sickle cell disease.
Early Childhood Data in Action
Three case studies from communities leveraging data to improve early childhood outcomes. Specifically, readers will uncover how to develop a culture of data collection, build local capacity, and use data to inform critical public policy decisions.
Early Childhood Comprehensive Systems CoIIN Learning Session Resources
Resources from the Early Childhood Comprehensive Systems CoIIN summer conference. Click in for on-site videos of two powerful panel presentations and a compilation of popular tools and resources.
Aligning Title V, Healthy Start, and Families to Increase New Mother Wellness in New Jersey
This issue brief provides insight into the critical role family and patient engagement plays in improving maternal and infant health outcomes. By looking at how New Jersey engaged mothers in its efforts to improve postpartum visit rates, and thus increase new mother wellness, this issue brief provides a road map for using patient and family engagement to optimize interventions.
Lessons in Demonstrating Return on Investment of Statewide Perinatal Health Improvement Initiatives
This issue brief highlights Oklahoma and Tennessee's experiences assessing the economic impact of statewide perinatal health improvement initiatives. Their findings can help other states prove the return on investment of public health initiatives and make the case for future efforts.
Early Childhood Developmental Screening and Title V: Building Better Systems
This issue brief provides insight into the Title V Maternal and Child Health Block Grant developmental screening activities across the country. It aims to inform public health professionals, partners and stakeholders of different developmental screening-related strategies that could be applied in communities, and to provide connections to states highlighted for their work on this topic.
Quality Improvement 102
This interactive course provides further insight into the quality improvement best practices needed to create effective change. The course reviews the concepts covered in Quality Improvement 101, and then gives direction on how to test improvement ideas and increase their impact and effectiveness. Lessons and exercises provide examples of best practices and offer direction on moving from one PDSA cycle to another.
Kindergarten Readiness Starts Prenatally
All children deserve an equal change to reach their full potential—to make lasting friendships, to explore and discover, and to dream big. Giving all children an equal start means supporting families from the earliest moments of development. Here, NICHQ President and CEO Scott D. Berns explains why we need to do more to support that early health by building a bridge between the prenatal and birth to 3 spaces.
Cracking the Code on Early Childhood Data
Highlights and lessons-learned from real communities who used real-time data to achieve real results. Their experiences can help demystify the data journey and show how data informs improvements to developmental health and overall well-being
Taking a Community-Based Approach to Early Childhood Systems-Change
A community-based partnership in Liberty City, FL works directly with the families who are most isolated from support. Discover more about the partnerships they've developed and the young lives they've changed.
How can Hospitals Reduce Sleep-Related Infant Deaths?
Improving conversations between health professionals and caregivers can help ensure that more families have the knowledge, skills and self-efficacy to practice safe sleep at every sleep. Right now, hospitals across the country are developing a bundle of evidence-based best to spread and scale. Keep reading for four key takeaways.
Recognizing Implicit Bias Can Reduce Inequities in Children’s Health
Here, Joseph R. Betancourt, MD, MPH—a nationally and internationally recognized expert in healthcare disparities, cross-cultural health and cross-cultural communication—shares recommendations to help health professionals and improvement teams better identify bias and prevent it from affecting their behaviors and decisions.
Lead Poisoning Continues to Put Too Many Children at Risk
In more than 4 million homes across America, children are living and playing while being exposed to the damaging effects of lead. This Alabama family's experience illustrates why improving provider education is an important driver for states seeking to improve systems of care; it leads to earlier testing, early and effective interventions, and the coordinated care families need so that more children have the opportunity to grow up in healthy, safe environments.