Working to Improve Sickle Cell Healthcare (WISCH)
Two programs—the Sickle Cell Disease Newborn Screening Program (SCDNBSP) and the Sickle Cell Disease Treatment Demonstration Program (SCDTDP)—aimed at improving screening and follow-up for those who have tested positive for sickle cell disease and trait, and improving care across the lifespan.
SCDNBSP: June 2011 to May 2015. SCDTDP: September 2010 to September 2014.
- Who: The SCDNBSP involved six teams comprised of federally qualified community health centers and other primary care sites, comprehensive sickle cell treatment centers and community-based organizations. The SCDTDP consisted of nine teams comprised of community centers, doctors, sickle cell departments, emergency room coordinators, parents and patients.
- Funder: The project was funded by HRSA and in partnership with the Boston Medical Center and the Sickle Cell Disease Association of America.
- Our Role: Facilitated a Breakthrough Series learning collaborative to apply quality improvement methodology to sickle cell disease care and education in a variety of settings. Led the development of expert-reviewed quality measures for sickle cell disease (e.g. acute care measures). We also served as the National Coordinating Center for SCDTDP and the National Coordinating and Evaluation Center for SCDNBSP. In these roles, we collected, monitored and distributed best practice data and findings, identified protocols for the treatment of sickle cell disease and related complications, and identified and disseminated educational materials related to sickle cell disease.
Fast Facts to Champion Support for Caregiver Depression
This brief provides fact sheets on the key strategies and information influencers need to help more caregivers affected by depression access the supportive services and resources.
Interactive E-Handout for Safe Sleep Conversations
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Opportunities for Medicaid to Transform Pediatric Care for Young Children to Promote Health, Development, and Health Equity
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National Breastfeeding Month Social Media Toolkit
In recognition of National Breastfeeding Month, we’ve put together a collection of social media posts and graphics that can be used to raise awareness about the importance and benefits of breast milk, as well as empower and support all mothers to achieve their breastfeeding goals. Download the toolkit to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.
Designing Systems to Eliminate the Consequences of Maternal Depression
The following case studies highlight stories of three states that have developed successful systems for screening for maternal depression and providing appropriate follow-up treatment.
Implicit Bias Resource Guide
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Racism and Public Health: Seeking an Improved Approach for the New Decade
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Five Strategies for Building Diversity in a Patient Family Advisory Council
Improving health care systems to address persistent health disparities requires partnering with the people those disparities most affect. Only they can accurately describe their experiences and share what barriers they’ve encountered. This is why it's vital to build diversity into patient family advisory councils.
NICHQ Employee Spotlight: Kenn Harris
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How Health Care Systems Can Isolate Women
Latoshia Rouse is the mother of triplets who were born prematurely, at 26 weeks gestation. She is also someone who knows too well that health care systems can both support and fail families. From struggling to find prenatal care to experiencing a dangerous postpartum hemorrhage, Rouse’s story reveals extensive holes in the health care system. To shed light on the pressing need for improvement across the continuum, Rouse shares each phase of her story here.
Steps to Reduce Opioid-Related Stigma in Pediatric Care
Stigma increases the feelings of guilt and shame experienced by mothers exposed to opioids, leaving already vulnerable mothers feeling isolated from supports. Here, two experts share strategies pediatric providers can use to reduce stigma and improve care for families affected by the opioid epidemic.