Working to Improve Sickle Cell Healthcare (WISCH)
Two programs—the Sickle Cell Disease Newborn Screening Program (SCDNBSP) and the Sickle Cell Disease Treatment Demonstration Program (SCDTDP)—aimed at improving screening and follow-up for those who have tested positive for sickle cell disease and trait, and improving care across the lifespan.
SCDNBSP: June 2011 to May 2015. SCDTDP: September 2010 to September 2014.
- Who: The SCDNBSP involved six teams comprised of federally qualified community health centers and other primary care sites, comprehensive sickle cell treatment centers and community-based organizations. The SCDTDP consisted of nine teams comprised of community centers, doctors, sickle cell departments, emergency room coordinators, parents and patients.
- Funder: The project was funded by HRSA and in partnership with the Boston Medical Center and the Sickle Cell Disease Association of America.
- Our Role: Facilitated a Breakthrough Series learning collaborative to apply quality improvement methodology to sickle cell disease care and education in a variety of settings. Led the development of expert-reviewed quality measures for sickle cell disease (e.g. acute care measures). We also served as the National Coordinating Center for SCDTDP and the National Coordinating and Evaluation Center for SCDNBSP. In these roles, we collected, monitored and distributed best practice data and findings, identified protocols for the treatment of sickle cell disease and related complications, and identified and disseminated educational materials related to sickle cell disease.
Mental Health Awareness Month Social Media Resources
In recognition of Mental Health Awareness Month, we’re sharing a social media toolkit and infographic to raise awareness and share resources that can change the way the world sees mental health. Download these resources to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.
Census Social Media Toolkit
We’ve put together a collection of social media posts and graphics to help you encourage families to participate in the census. Use these posts on your own social channels to connect with families and prevent children from being undercounted. Make sure to tag @NICHQ so we can like and share your post.
National Minority Health Month Social Media Toolkit
In recognition of National Minority Health Month, we’re sharing a social media toolkit and infographic to raise awareness about racial and ethnic disparities and the need to achieve health equity. Download these resources to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.
Rare Disease Day Social Media Toolkit
Use this social media toolkit with infographics, images and sample posts sharing key statistics and facts that illustrate the impact rare diseases have on over 25 million Americans. Share the toolkit with your colleagues and use it yourself on Rare Disease Day on Feb. 29, 2020
Fast Facts to Champion Support for Caregiver Depression
This brief provides fact sheets on the key strategies and information influencers need to help more caregivers affected by depression access the supportive services and resources.
Interactive E-Handout for Safe Sleep Conversations
This interactive E-handout helps families learn about safe sleep practices. Health professionals can sit with families and click through the pages where they’ll find different sleep scenes and environments. A series of prompts and pop-ups show what is and is not safe and inspire learning conversations. Families can also access the handout at home and use it to teach their friends and families about safe sleep.
An Introduction to Measuring Reliability
Measuring reliability enables us to understand the effectiveness of our health systems and initiatives and discover where improvements are needed. Not sure where to start? We're sharing an introduction to measuring and increasing reliability in your projects and initiatives.
Making Fathers Visible in Maternal and Child Health
From cognitive and social emotional development to education and accomplishments, children with involved fathers achieve better health outcomes. Yet despite fathers’ positive impact on maternal and child health, many of the systems intended to serve women and children were not designed with fathers in mind. That’s why we’re sharing strategies to increasing father involvement in early childhood programs.
NICHQ Employee Spotlight: Barbara Lambiaso
Each month, we’re shining a spotlight on a NICHQ employee, asking them to share their memories, advice, and goals. Project Manager Barbara Lambiaso shares her commitment to various NICHQ projects, including an initiative that serves children and adults with sickle cell disease.
Racial Inequality and Injustice and the Health of America’s Children
Our nation is hurting. Many are afraid, angry, anxious, and frustrated as we witness institutional racism and social injustice, once again, ravaging communities of color. NICHQ CEO Scott D. Berns calls for meaningful change to end to systemic racism and injustice in our country.
Indianapolis Gives Moms and Babies in Prison a Healthy Start
Committed to championing a too-often forgotten population, Indianapolis Healthy Start partnered with the state’s women’s prison system to ensure that moms and babies could receive all recommended services and supports, starting with prenatal care and continuing for two years after birth.