Working to Improve Sickle Cell Healthcare (WISCH)
Two programs—the Sickle Cell Disease Newborn Screening Program (SCDNBSP) and the Sickle Cell Disease Treatment Demonstration Program (SCDTDP)—aimed at improving screening and follow-up for those who have tested positive for sickle cell disease and trait, and improving care across the lifespan.
SCDNBSP: June 2011 to May 2015. SCDTDP: September 2010 to September 2014.
- Who: The SCDNBSP involved six teams comprised of federally qualified community health centers and other primary care sites, comprehensive sickle cell treatment centers and community-based organizations. The SCDTDP consisted of nine teams comprised of community centers, doctors, sickle cell departments, emergency room coordinators, parents and patients.
- Funder: The project was funded by HRSA and in partnership with the Boston Medical Center and the Sickle Cell Disease Association of America.
- Our Role: Facilitated a Breakthrough Series learning collaborative to apply quality improvement methodology to sickle cell disease care and education in a variety of settings. Led the development of expert-reviewed quality measures for sickle cell disease (e.g. acute care measures). We also served as the National Coordinating Center for SCDTDP and the National Coordinating and Evaluation Center for SCDNBSP. In these roles, we collected, monitored and distributed best practice data and findings, identified protocols for the treatment of sickle cell disease and related complications, and identified and disseminated educational materials related to sickle cell disease.
Aligning Title V, Healthy Start, and Families to Increase New Mother Wellness in New Jersey
This issue brief provides insight into the critical role family and patient engagement plays in improving maternal and infant health outcomes. By looking at how New Jersey engaged mothers in its efforts to improve postpartum visit rates, and thus increase new mother wellness, this issue brief provides a road map for using patient and family engagement to optimize interventions.
Lessons in Demonstrating Return on Investment of Statewide Perinatal Health Improvement Initiatives
This issue brief highlights Oklahoma and Tennessee's experiences assessing the economic impact of statewide perinatal health improvement initiatives. Their findings can help other states prove the return on investment of public health initiatives and make the case for future efforts.
Early Childhood Developmental Screening and Title V: Building Better Systems
This issue brief provides insight into the Title V Maternal and Child Health Block Grant developmental screening activities across the country. It aims to inform public health professionals, partners and stakeholders of different developmental screening-related strategies that could be applied in communities, and to provide connections to states highlighted for their work on this topic.
Quality Improvement 102
This interactive course provides further insight into the quality improvement best practices needed to create effective change. The course reviews the concepts covered in Quality Improvement 101, and then gives direction on how to test improvement ideas and increase their impact and effectiveness. Lessons and exercises provide examples of best practices and offer direction on moving from one PDSA cycle to another.
Essentials of Collaboration
This interactive course explores how to produce positive population health outcomes through effective collaboration. With directions on breaking down silos, aligning activities, and working productively together, this course provides a foundation for partnering with others to make a difference in your community.
Strategies for Effective Leadership in Health Improvement Efforts
Effective leadership can make or break a quality improvement effort. And that’s a lot of pressure for any one individual. To help, we’re sharing three key strategies on effective leadership from Gwen Webber-McLeod, president and CEO of Gwen Inc. and expert in leadership development.
Make Perinatal Regionalization Work for Your State
Perinatal regionalization can improve health outcomes for mothers and babies, creating a stronger system of care. But communication and process barriers can get in the way. Here, Dr. Christopher Glantz, MD, MPH, provides strategies for developing a regionalization system that empowers affiliate hospitals as true partners in collaboration.
Launch an Early Childhood Parent Academy
Interested in developing free, accessible lessons that empower parents around early childhood development? An early childhood parent academy—a structured set of courses covering key topic areas that parents need to know about early childhood development—does just that. Click in for a curriculum and strategies on how to launch one in your state.
Keeping Families Together Improves Children’s Health Outcomes, from Borders to Communities
Thousands of children were recently separated from their families on the Texas border. Too many children have undergone the trauma of preventable family separation, which cannot be undone. NICHQ's new Chief Health Officer, Elizabeth Coté, MD, MPA, has witnessed the devastating effects of caregiver-child separation in communities across the country and across the world. In this article, she speaks up about the harm of that separation and urges us to remain vigilant about keeping families together.
Case Study: Engagement of Title V, Healthy Start and Families to Increase New Mother Wellness in NJ
A new issue brief, co-authored by AMCHP and NICHQ, explores how New Jersey engaged mothers in its efforts to improve postpartum visit rates as a strategy to increase new mother wellness.
Lessons in Demonstrating Return on Investment from State-Based Health Campaigns
States have seen the need for and benefit of generating double impact evidence—health and economic—of their maternal and child health initiatives. However, conducing return on investment (ROI) analysis is not something all states have familiarity with or capabilities to do. A new issue brief shares lessons learned by Oklahoma and Tennessee on the process of performing an ROI analysis of a maternal and child health program.