Working to Improve Sickle Cell Healthcare (WISCH)
Two programs—the Sickle Cell Disease Newborn Screening Program (SCDNBSP) and the Sickle Cell Disease Treatment Demonstration Program (SCDTDP)—aimed at improving screening and follow-up for those who have tested positive for sickle cell disease and trait, and improving care across the lifespan.
SCDNBSP: June 2011 to May 2015. SCDTDP: September 2010 to September 2014.
- Who: The SCDNBSP involved six teams comprised of federally qualified community health centers and other primary care sites, comprehensive sickle cell treatment centers and community-based organizations. The SCDTDP consisted of nine teams comprised of community centers, doctors, sickle cell departments, emergency room coordinators, parents and patients.
- Funder: The project was funded by HRSA and in partnership with the Boston Medical Center and the Sickle Cell Disease Association of America.
- Our Role: Facilitated a Breakthrough Series learning collaborative to apply quality improvement methodology to sickle cell disease care and education in a variety of settings. Led the development of expert-reviewed quality measures for sickle cell disease (e.g. acute care measures). We also served as the National Coordinating Center for SCDTDP and the National Coordinating and Evaluation Center for SCDNBSP. In these roles, we collected, monitored and distributed best practice data and findings, identified protocols for the treatment of sickle cell disease and related complications, and identified and disseminated educational materials related to sickle cell disease.
Early Childhood Developmental Screening and Title V: Building Better Systems
This issue brief provides insight into the Title V Maternal and Child Health Block Grant developmental screening activities across the country. It aims to inform public health professionals, partners and stakeholders of different developmental screening-related strategies that could be applied in communities, and to provide connections to states highlighted for their work on this topic.
Quality Improvement 102
This interactive course provides further insight into the quality improvement best practices needed to create effective change. The course reviews the concepts covered in Quality Improvement 101, and then gives direction on how to test improvement ideas and increase their impact and effectiveness. Lessons and exercises provide examples of best practices and offer direction on moving from one PDSA cycle to another.
Essentials of Collaboration
This interactive course explores how to produce positive population health outcomes through effective collaboration. With directions on breaking down silos, aligning activities, and working productively together, this course provides a foundation for partnering with others to make a difference in your community.
Sickle Cell Disease Treatment Demonstration Program 2017 Congressional Report
The Sickle Cell Disease Treatment Demonstration Program 2017 Congressional Report details the many activities, outcomes, lessons learned and recommendations stemming from this work.
Sickle Cell Disease Treatment Demonstration Program 2017 Model Protocol
The purpose of this 2017 model protocol is to provide clinicians, nurses, allied health professionals, community-based organizations and public health agencies with recommendations and strategies to improve care provided to individuals with sickle cell disease and trait.
Sickle Cell Disease Treatment Demonstration Program Compendium of Tools and Materials
This compendium identifies promising practices and strategies used by participants in the Sickle Cell Disease Treatment Demonstration Program (SCDTDP) to implement changes in their health systems related to improving access to care, increasing use of hydroxyurea and provider education.
Social-Emotional Health is Often Invisible, But Needs Support Too
Here, NICHQ Project Director Colleen Murphy, MSMOB, shares how a classroom shooting changed her daughter's life and inspired Murphy to improve children's health systems.
Getting My Son the Support He Needed Shouldn’t Have Been this Hard
When NICHQ's Senior Director of Programs thought her son might have a disability, she realized that health systems can leave mothers feeling powerless to help their children. It's one of the reasons she's so committed to their improvement.
Helping Health Plans Improve Asthma Outcomes
Asthma currently affects over six million children across the U.S., making it one of the most widespread chronic childhood diseases. And while successful treatments exist, too many children still end up in the emergency room fighting to breathe. Working with health plans can change those numbers by ensuring that preventative treatments and services help more children. Here's how one state is engaging health plans to improve asthma outcomes.
Starting School Prepared Should Be a Right, Not a Privilege
In theory, everyone should start school on equal footing. But the reality is very different for many children across the country. Even before birth, social determinants of health such as parental income and maternal education affect a child's developmental health. Changing this means building stronger systems that support and empower families so all children can achieve kindergarten readiness.
Our Systems Meant to Help Are Hurting Black Families
When does mandated reporting hurt rather than improve health outcomes? Erin Cloud, who’s spent the past seven years advocating for parents in the child welfare system, shares a thought provoking story about what happens when biased reporting causes unintentional harm. Here, we shine a spotlight on this troubling example of when systems meant to support children’s health end up failing black mothers and children.
How Do We Address Safe Sleep Disparities? Start by Building Trust
Healthy babies shouldn’t die in their sleep. But, despite decades of trying to reduce the number of sudden unexpected infant deaths (SUID) they still persist. And most often, their persistence affects families of color. In this article, Founder of the Global Infant Safe Sleep Center, Stacy Scott, shares ideas on how we can best address this alarming lack of equity and reduce sleep-related deaths across all populations.