Working to Improve Sickle Cell Healthcare (WISCH)
Two programs—the Sickle Cell Disease Newborn Screening Program (SCDNBSP) and the Sickle Cell Disease Treatment Demonstration Program (SCDTDP)—aimed at improving screening and follow-up for those who have tested positive for sickle cell disease and trait, and improving care across the lifespan.
SCDNBSP: June 2011 to May 2015. SCDTDP: September 2010 to September 2014.
- Who: The SCDNBSP involved six teams comprised of federally qualified community health centers and other primary care sites, comprehensive sickle cell treatment centers and community-based organizations. The SCDTDP consisted of nine teams comprised of community centers, doctors, sickle cell departments, emergency room coordinators, parents and patients.
- Funder: The project was funded by HRSA and in partnership with the Boston Medical Center and the Sickle Cell Disease Association of America.
- Our Role: Facilitated a Breakthrough Series learning collaborative to apply quality improvement methodology to sickle cell disease care and education in a variety of settings. Led the development of expert-reviewed quality measures for sickle cell disease (e.g. acute care measures). We also served as the National Coordinating Center for SCDTDP and the National Coordinating and Evaluation Center for SCDNBSP. In these roles, we collected, monitored and distributed best practice data and findings, identified protocols for the treatment of sickle cell disease and related complications, and identified and disseminated educational materials related to sickle cell disease.
Opportunities for Medicaid to Transform Pediatric Care for Young Children to Promote Health, Development, and Health Equity
Covering one half of young children birth to five, Medicaid (and Medicaid-CHIP programs) plays a critical role in improving young children’s health and developmental outcomes and assisting the families who support their healthy development. This document provides a common framework and specific opportunities for states and their partners working to improve Medicaid for young children.
National Breastfeeding Month Social Media Toolkit
In recognition of National Breastfeeding Month, we’ve put together a collection of social media posts and graphics that can be used to raise awareness about the importance and benefits of breast milk, as well as empower and support all mothers to achieve their breastfeeding goals. Download the toolkit to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.
Designing Systems to Eliminate the Consequences of Maternal Depression
The following case studies highlight stories of three states that have developed successful systems for screening for maternal depression and providing appropriate follow-up treatment.
Implicit Bias Resource Guide
Recognizing and addressing biases is a critical step towards eliminating health disparities and achieving health equity. In this brief, you’ll find three resources to support your work to address your own implicit biases: seven steps we can all take to minimize implicit bias; A Q&A with health experts about how to recognize and address implicit bias; and a selection of stories shared with NICHQ about the many ways bias has affected individuals.
National Minority Health Month Social Media Graphics
We've put together a small collection of social media graphics to help raise awareness about some of the health concerns facing minority families. Download them to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.
Maternal Depression: First Steps
This issue brief will help mothers, families and family advocates understand the signs of maternal depression, the interdependence between caregiver-child health and well-being, and provides guidance on how mothers can connect with their pediatricians to get the help they need to heal.
NICHQ Employee Spotlight: Meera Menon
In honor or our 20th anniversary, we're sharing insights, memories and goals from the NICHQ team. Here, NICHQ Senior Analyst shares what brought her to NICHQ and her role in supporting NICHQ' quality improvement projects.
Rare Diseases Deserve Our Attention
Between 25 and 30 million Americans, many of them children, are living with a rare disease. The complex challenges facing these children and families deserve attention and demand innovative responses. Here, NICHQ President and CEO Scott D. Berns, MD, MPH, shares his experiences, elaborates on successful strategies, and describes his goals for the future.
North Carolina’s Strategy to Address Social Determinants of Health
North Carolina is developing a system that connects individuals with resources to address social, economic and environmental barriers to their health—such as housing, food insecurity, and transportation. By putting funding and policy efforts into addressing social determinants of health, North Carolina is building a system that can improve health outcomes for children and families across the state.
NICHQ Employee Spotlight: Colleen Bernard
In honor or our 20th anniversary, we're sharing insights, memories and goals from the NICHQ team. Here, NICHQ Project Specialist Colleen Bernard shares her proudest moment during her time at NICHQ and her goals for NICHQ's future.
Breastfeeding in 2019: Safe Sleep, Bias, Gender Equitable Norms, and Paid Leave
In honor of National Breastfeeding Month, we’ve taken time with NICHQ Faculty Expert, Lori Feldman-Winter, MD, MPH, an internationally and nationally recognized expert on breastfeeding nutrition, education and policy, to recognize successes and learn about opportunities for improvement. Her frank description of bias and her passion for promoting gender-equitable social norms have inspired us to continue pursuing sustainable improvements.
Successful Strategies Hospitals Can Use to Support Safe Sleep
Hospitals on a national initiative to improve safe sleep came together to share successes and lessons-learned. Here, find their highest-rated strategies and change ideas, all of which reflect early successes in their work. Hospitals seeking to improve safe sleep education can refer to this list as a place to start and guide for gaining quick wins.