Working to Improve Sickle Cell Healthcare (WISCH)
Two programs—the Sickle Cell Disease Newborn Screening Program (SCDNBSP) and the Sickle Cell Disease Treatment Demonstration Program (SCDTDP)—aimed at improving screening and follow-up for those who have tested positive for sickle cell disease and trait, and improving care across the lifespan.
SCDNBSP: June 2011 to May 2015. SCDTDP: September 2010 to September 2014.
- Who: The SCDNBSP involved six teams comprised of federally qualified community health centers and other primary care sites, comprehensive sickle cell treatment centers and community-based organizations. The SCDTDP consisted of nine teams comprised of community centers, doctors, sickle cell departments, emergency room coordinators, parents and patients.
- Funder: The project was funded by HRSA and in partnership with the Boston Medical Center and the Sickle Cell Disease Association of America.
- Our Role: Facilitated a Breakthrough Series learning collaborative to apply quality improvement methodology to sickle cell disease care and education in a variety of settings. Led the development of expert-reviewed quality measures for sickle cell disease (e.g. acute care measures). We also served as the National Coordinating Center for SCDTDP and the National Coordinating and Evaluation Center for SCDNBSP. In these roles, we collected, monitored and distributed best practice data and findings, identified protocols for the treatment of sickle cell disease and related complications, and identified and disseminated educational materials related to sickle cell disease.
Fast Facts to Champion Support for Caregiver Depression
This brief provides fact sheets on the key strategies and information influencers need to help more caregivers affected by depression access the supportive services and resources.
Interactive E-Handout for Safe Sleep Conversations
This interactive E-handout helps families learn about safe sleep practices. Health professionals can sit with families and click through the pages where they’ll find different sleep scenes and environments. A series of prompts and pop-ups show what is and is not safe and inspire learning conversations. Families can also access the handout at home and use it to teach their friends and families about safe sleep.
Opportunities for Medicaid to Transform Pediatric Care for Young Children to Promote Health, Development, and Health Equity
Covering one half of young children birth to five, Medicaid (and Medicaid-CHIP programs) plays a critical role in improving young children’s health and developmental outcomes and assisting the families who support their healthy development. This document provides a common framework and specific opportunities for states and their partners working to improve Medicaid for young children.
National Breastfeeding Month Social Media Toolkit
In recognition of National Breastfeeding Month, we’ve put together a collection of social media posts and graphics that can be used to raise awareness about the importance and benefits of breast milk, as well as empower and support all mothers to achieve their breastfeeding goals. Download the toolkit to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.
Designing Systems to Eliminate the Consequences of Maternal Depression
The following case studies highlight stories of three states that have developed successful systems for screening for maternal depression and providing appropriate follow-up treatment.
Implicit Bias Resource Guide
Recognizing and addressing biases is a critical step towards eliminating health disparities and achieving health equity. In this brief, you’ll find three resources to support your work to address your own implicit biases: seven steps we can all take to minimize implicit bias; A Q&A with health experts about how to recognize and address implicit bias; and a selection of stories shared with NICHQ about the many ways bias has affected individuals.
Breastfeeding Takes a Village and, Too Often, Black Women Don’t Have One
Breastfeeding peer support networks run for and by Black women fill a gap in breastfeeding support for Black women—a gap largely created by historic and systemic inequities. Here, Khadija Garrison Adams, co-founder of Black Lactation Circle (BLaC) of Central Ohio, shares how their community is empowering black pregnant and nursing mothers to meet their breastfeeding goals.
Ohio’s Multi-Pronged Approach to Addressing the Opioid Crisis
The Ohio Perinatal Quality Collaborative is testing innovative strategies for improving outcomes for the thousands of families affected by the opioid crisis. Here, they share their approach, including standardizing identification and treatment for opioid exposed infants in NICUs, encouraging compassionate responses from providers, and ensuring comprehensive, coordinated maternity care.
Eliminating Sleep-Related Infant Deaths Starts by Identifying What Causes Them
Understanding what causes infant deaths gives states and communities the information they need to identify focused, effective solutions. This makes infant mortality data—data that reveals the causes and contributors to death and system barriers—irreplaceable assets for any infant health improvement effort. And that makes the National Center for Fatality Review and Prevention (National CFRP) an essential partner.
NICHQ Employee Spotlight: Meera Menon
In honor or our 20th anniversary, we're sharing insights, memories and goals from the NICHQ team. Here, NICHQ Senior Analyst shares what brought her to NICHQ and her role in supporting NICHQ' quality improvement projects.
Rare Diseases Deserve Our Attention
Between 25 and 30 million Americans, many of them children, are living with a rare disease. The complex challenges facing these children and families deserve attention and demand innovative responses. Here, NICHQ President and CEO Scott D. Berns, MD, MPH, shares his experiences, elaborates on successful strategies, and describes his goals for the future.
North Carolina’s Strategy to Address Social Determinants of Health
North Carolina is developing a system that connects individuals with resources to address social, economic and environmental barriers to their health—such as housing, food insecurity, and transportation. By putting funding and policy efforts into addressing social determinants of health, North Carolina is building a system that can improve health outcomes for children and families across the state.