Resources

This guide is intended to help both family members and healthcare professionals who are working together to improve care for children with special healthcare needs. Joining together in multi-disciplinary teams, family members and providers are increasingly working as equal partners to improve care. Collaborating as equals may be new for family members and providers. This guide includes information and guidance on how to get the most out of this potentially powerful partnership.

This issue brief details the intersections between health departments' efforts to earn public health accreditation with their work in collaborative improvement & innovation networks (CoIIN). Using the CoIIN to Reduce Infant Mortality (IM CoIIN) as an example and showing the Oklahoma State Department of Health used its participation to inform its accreditation procedures, this brief presents solutions for creating efficient practices to achieve both aims. 

The resources in this toolkit are designed to help primary care practice teams provide coordinated, integrated and multidisciplinary services to both prevent obesity and improve care for children who are already overweight or at risk for becoming overweight. Includes tools for prevention, assessment and diagnosis, management and treatment and community resources.

This action kit is designed to reduce loss to follow-up for newborns after their initial hearing screening. The kit offers solutions for engaging families and enrolling newborns in early intervention services. The ideas can help audiologists and EHDI offices improve outcomes for infants with hearing loss.

This toolkit is designed to help your pediatric practice build a system for listening to this feedback by creating their own Patient and Family Advisory Council (PFAC). The kit provides step-by-step guidance on how to effectively engage family perspectives in the design of services and to improve overall quality in the delivery of those services.

In 2009, NICHQ was commissioned by First Focus to author a policy brief on how healthcare reform could better address children’s health. The report outlines NICHQ’s policy recommendations for keeping pediatric health at the forefront of the reform agenda.

This report to Congress synthesizes the results and recommendations of four years of the Sickle Cell Disease Treatment Demonstration Program (one part of NICHQ's Working to Improve Sickle Cell Healthcare project).

This issue brief details the use of LARC in preventing unplanned pregnancies, the current availability and education for women, barriers to prescribing LARC, and potential Medicaid reimbursement models to improve LARC access.

This issue brief analyzes the perinatal regionalization as a system for improving risk-appropriate care, and how Medicaid funding can be used by states to better serve at-risk moms and connect them with the right treatment. The case studies from California and Georgia show how some states are already using Medicaid funding to achieve these goals.

This guide provides the rationale and resources to support community organizations, governmental agencies and local collaboratives in their efforts to reach out and engage healthcare professionals to become part of their childhood obesity community advocacy team.