February is also Black History Month! Click here to observe #BlackHistory, #BlackExcellence, and #BlackJoy.

Each year, the last day of February is dedicated to raising awareness about rare diseases, defined as a condition that affects fewer than 200,000 people. Despite the fact that many rare diseases go undiagnosed and no cure exists for a majority of rare diseases, progress is being made to ensure that children and families are receiving the individualized support and care needed to reach their optimal health. Keep scrolling to learn how you can participate in Rare Disease Day with NICHQ!

Share Your Story

Child with Doctor

Improve Care for Patients

NICHQ Initiatives Focused on Rare Diseases

Rare As One Network Workstream FacilitationNICHQ is supporting the launch of patient-centered research networks by facilitating topical workstreams with grantees from the Rare As One Project (RAO).