Roadmap to Inviting, Engaging, and Including Patient/Family Partners in Quality Improvement and Other Related Initiatives
The National Institute for Children’s Health Quality (NICHQ) and the Florida Department of Health Office of Children’s Medical and Specialty Services developed a Roadmap to Inviting, Engaging, and Including Patient/Family Partners in Quality Improvement and Other Related Initiatives.
The roadmap provides a framework for effective engagement and inclusion of a Patient/Family Partner (PFP) onto a work group, advisory council, Quality Improvement (QI) team, or other clinical or health systems initiatives.
The Florida Department of Health Office of Children’s Medical Services funds and partners with NICHQ to develop and facilitate the Florida Children’s Medical Services Learning and Action Network (FL CMS LAN), which is comprised of seven specific Statewide Networks for Access and Quality (SNAQ) teams to improve the quality and access to care for children and youth with special healthcare needs.
The roadmap guide was developed by Linda Hampton Starnes, Statewide Family Leader, Title V Children and Youth with Special Health Care Needs Program, Office of Children’s Medical Services (CMS), Florida Department of Health, in collaboration with CMS’s Learning and Action Network (LAN) partner, the National Institute for Children’s Health Quality (NICHQ). Lead Editor was Eliza Williamson, Senior Project Manager, NICHQ, with supplemental editing by: Sandra Widland, NICHQ and CMS LAN Project Director; Joni Hollis, Bureau Chief, Office of CMS; Kelli Stannard, Nursing Consultant, Office of CMS; and Angela Miney, Family Partner, University of Florida Health Pediatric Pulmonology Center.