Resources

Through NICHQ's 2017-2021 Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program (SCDTDRCP), we worked with five regional teams from across the country to improve coordination and service delivery for individuals living with sickle cell disease, enhance access to services, and improve and expand patient and provider education.

Too often, people living with Sickle Cell Disease (SCD) and their families and caregivers miss critical healthcare appointments for a variety of reasons. These important resources and tools can be used to guide efforts to improve relationships between providers and people living with SCD. 

Early Childhood Health Equity (ECHE) work seeks to strengthen early childhood systems to support healthy child development and reduce health inequities and disparities that can have a lifelong impact. These briefs synthesize the recent work of the ECHE Landscape Project and highlight the themes and findings that emerged across the project activities.

This brief provides fact sheets on the key strategies and information influencers need to help more caregivers affected by depression access the supportive services and resources.

The following case studies highlight stories of three states that have developed successful systems for screening for maternal depression and providing appropriate follow-up treatment.

Three case studies from communities leveraging data to improve early childhood outcomes. Specifically, readers will uncover how to develop a culture of data collection, build local capacity, and use data to inform critical public policy decisions.

This report provides the results of a national scan of metrics used by early childhood systems and initiatives to assess the well-being of young children and their families. Along with a detailed list of all metrics scanned, the report includes observations and recommendations about the state of early childhood data, an overview of common challenges, and recommendations about the most important opportunities to advance measurement and data use in the field of early childhood development and care.

Resources from the Early Childhood Comprehensive Systems Collaborative Improvement and Innovation Network summer conference. Click in for on-site videos of two powerful panel presentations and a compilation of popular resources.

This action kit is designed to reduce loss to follow-up for newborns after their initial hearing screening. The kit offers solutions for engaging families and enrolling newborns in early intervention services. The ideas can help audiologists and EHDI offices improve outcomes for infants with hearing loss.

In the Spread of Quality Improvement for Children and Youth with Special Healthcare Needs: An integrated Systems Strategy for Building the Title V Infrastructure project, NICHQ was tasked with improving the health and well being of children and youth with special healthcare needs and their families through building the capacity of state Title V programs to create and sustain effective community-based systems of care for this population. This report documents NICHQ's learnings and impact.