Resources

This executive summary provides an overview of the Program, highlighting core Program partners, the Program's impact, and the three healthcare domains Regional Coordinating Centers worked to address. 

This compendium identifies promising practices and strategies used by participants in the Sickle Cell Disease Treatment Demonstration Program (SCDTDP) to implement changes in their health systems related to improving access to care, increasing use of hydroxyurea and provider education.

This Model Protocol provides clinicians, nurses, allied health professionals, community-based organizations, and public health agencies with recommendations and strategies to improve care provided to individuals with sickle cell disease and trait. 

Access our online collection of social media posts and graphics that promote awareness for sickle cell disease (SCD) and sickle cell trait and provides resources to health care professionals and people living with SCD.

Mental Health Awareness Month is celebrated to fight stigma, educate the public, and advocate for policies that support people with mental illness. We’ve put together an online collection of social media posts and graphics to outline the significant role mental health plays in overall health and wellness and promote better mental health for children, families, and caregivers.

In recognition of Mental Health Awareness Month, we’re sharing a social media toolkit and infographic to raise awareness and share resources that can change the way the world sees mental health. Download these resources to use on your own social channels and make sure to tag @NICHQ so we can like and share your post.

Recognizing and addressing biases is a critical step towards eliminating health disparities and achieving health equity. In this brief, you’ll find three resources to support your work to address your own implicit biases: seven steps we can all take to minimize implicit bias; A Q&A with health experts about how to recognize and address implicit bias; and a selection of stories shared with NICHQ about the many ways bias has affected individuals.

The purpose of this model protocol is to provide clinicians, nurses, allied health professionals, community-based organizations and public health agencies with recommendations and strategies to improve care provided to individuals with sickle cell disease and trait.

The Sickle Cell Disease Treatment Demonstration Program 2017 Congressional Report details the many activities, outcomes, lessons learned and recommendations stemming from this work.

This compendium identifies promising practices and strategies used by participants in the Sickle Cell Disease Treatment Demonstration Program (SCDTDP) to implement changes in their health systems related to improving access to care, increasing use of hydroxyurea and provider education.