Resources

Rare Disease Day Social Media Toolkit

Use this social media toolkit with infographics, images and sample posts sharing key statistics and facts that illustrate the impact rare diseases have on over 25 million Americans. Share the toolkit with your colleagues and use it yourself on Rare Disease Day on Feb. 29, 2020.

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Implicit Bias Resource Guide

Recognizing and addressing biases is a critical step towards eliminating health disparities and achieving health equity. In this brief, you’ll find three resources to support your work to address your own implicit biases: seven steps we can all take to minimize implicit bias; A Q&A with health experts about how to recognize and address implicit bias; and a selection of stories shared with NICHQ about the many ways bias has affected individuals.

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Sickle Cell Pain in the Emergency Department: A Guide to Improving Care

This implementation guide was developed for healthcare providers who care for individuals with sickle cell disease in hematology programs and acute care settings such as the emergency departments and day hospitals. It provides insights and lessons learned from multidisciplinary teams across the country that have succeeded in improving the management of pain episodes in emergency departments or day hospitals for both pediatric and adult patients.

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